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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Wednesday, May 11, 2011

UK : 2 journalists looking for TMAU volunteers for media stories

UK: looking for an 18-40 year old TMAU female who has not appeared in a TMAU media story before
The concept of systemic body odor has almost no awareness in society, including in the medical community. The only systemic body odor with a 'foot in the door' is trimethylaminuira (TMAU). Systemic body odors and halitosis are of course still a major 'unknown' taboo in society. So, anyone who volunteers to raise awareness through the media can safely regard themselves as a hero.

In the UK a the moment, 2 journalists are looking for TMAU volunteers to do articles on. At this stage, it is not known what medium the stories will appear on.

Natalie Lisbona at is looking for an 18-40 year old TMAU female who has not appeared in a TMAU media story before. If you want to find out further details or apply you can contact her through her website : TMAU media story opportunity

Update from Natalie :
Ideally it will be for a magazine and a newspaper but never say never to TV.
If it's a younger woman, in her 20's, it opens up more media potentials for us but obviously it depends on who comes back to you.Yes they will get paid, again depending on the publication and if they appear in more than one then obviously the fee doubles.
I will also put any support group into the article as a way of thanking you for your help, just please let me know the details.
Kindest regards

Also, the forum owner of has been contacted by a different journalist looking for a TMAU volunteer. Details can be seen on the website

Any volunteers should remember they are relying on the journalist as to how the article turns out, and it is a risk. It is not known if a fee is given.


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