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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, July 9, 2011

Google blogger polls seem to be working correctly again

What do you think are your health complaints of the list below ? (tick one or more)

Update: Unfortunately although the 'backwards' problem seems to be fixed, it now seems that some votes do not register or register incorrectly, with perhaps only the Firefox browser working correctly. Nevertheless, feel free to keep voting !

Regular readers may have noticed our polls tend to recede in number rather than increase. This seems to have been caused by a bug in google's blogger coding but after a few years the problem seems to have been recently fixed. The polls were intended as eye-catching 'vox-pop' surveys to quickly catch the attention of any passing experts or decision-makers. It was hoped our polls including fecal body odor would publicise what among society would be a never before heard problem. Unfortunately with the poll going backwards we deleted the old poll and started anew, only for the second poll to go backwards after a while. It is likely that over 1500 people took part in our main poll.

Even amongst our own community there seems a wide range of beliefs as to the source of their own problem, mainly due to the fact that normally the sufferer cannot smell themselves and so are probably not the best to give testimony of their own problem. Judging by the posts in the forums, an attempt has been made to list the various 'disorders' our community regards as their problem. As well as the range of odor problems, our community even includes a disorder that sufferers feel may not emit an offensive odor but that people may be allergic to. We make no judgment of the 'list' of disorders. It is merely an attempt to see how many feel they have each disorder.

With the polls seemingly working correctly, we may be taking a renewed interest in polling as a means to help ourselves understand our disorders and to act as eye-catching evidence to anyone who may be able to help us.


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