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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


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want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, September 2, 2011

Media coverage of the recent TMAU paper published by Monell Institute

We recently posted about the new TMAU paper published by the Monell Institute in Philadelphia. There has been some interesting (but seemingly limited) media coverage.

Science Daily TMAU Article
Science Daily always do comprehensive articles on medical papers. The paper itself is premium content, so the media articles provide free insight into the full paper. A quote of interest from the Science Daily is about the seeming variation of odor. The quote seems to imply they are concluding the variation is down to trimethylamine

"Although the scientific and popular literature typically describes TMAU sufferers as smelling fishy, our sensory exams demonstrated this not to be so," said study author George Preti, Ph.D., an analytical organic chemist at Monell. "The odors are diverse and only after a choline challenge do the most severe cases have a fish-like odor."

Washington Post TMAU article
In this article, of particular interest is that the journalist says that between 1-11% could have trimethylaminuria. Presumably most would be the transient kind.

An estimated 1 percent to 11 percent of the population may have trimethylaminuria, notes the study, published in August in the American Journal of Medicine.

Unfortunately there does not seem to be much more media coverage in the story that was quick to find in a google news search.

You can buy the paper here : Monell 2011 TMAU paper $31.50

Updated : New links on story
Huffington Post
MyFoxDetroit
Healthcanal.com

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