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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, November 15, 2011

Daily Mail article on body odor and other odor problems today

Daily Mail Body Odor Halitosis article 
The popular UK newspaper that has an accompanying website that has become popular worldwide, The Daily Mail, today has an article on the different forms of odor problems people are likely to have.

Daily Mail article on the causes of body odor, halitosis, gas, and smelly feet

Unfortunately there is no sign of systemic/bloodborne/metabolic body odors and/or halitosis, listing only about the surface/localized types of body odor/halitosis. Each part of the article involves information from an 'expert'. Probably the only one that may be relevant to and influence future awareness of systemic odors might be the advisor for the halitosis article ; Dr Nigel Carter of the British & International Dental Health Foundation. We are having difficulty locating his email address.

The day that such a 'filler' article includes systemic body odors/halitosis, we know that the general public have a good chance of generally being aware of these forms of odor problems, which may turn out to be a substantial subset of the body odor/halitosis community, if not the majority.


Animal Ways said...

A Great post! thanks for the info on the daily mail. I guess they didn't cover this also how to stop bad breath

May 10, 2016, 7:35:00 AM
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