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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, November 24, 2011

Thanksgiving Message: Coming Out of Our Closets to Become Who We Really Are



Today is a special day of the year in which we follow a tradition in the United States of giving thanks to God. Sometimes it is difficult to feel thankful when we are imprisoned inside our "closets;" but if we chose to break out and come out to be who we truly are, and to grow in our journey through life, the freedom to do so impels us to thanksgiving! I hope you enjoy this piece. HAPPY THANKSGIVING!

María




If you keep listening to the love, if you keep receiving the love, trusting the love—even with all your limitations, unworthiness, limited intellect, or whatever you feel holds you back—you start to experience within yourself a sense of possibility. Whatever life is inviting you into, you have this sense that it’s okay and, even better, that you can do it! That is the joy of the saints. Now you don’t have to do it by the world’s criteria of success or performance. As Mother Teresa loved to say, “The only real success is faithfulness.” To be faithful to this inner love is in itself the greatest success. It is of itself the possibility. No outer successes are necessary to be happy.

...It’s not just possibility they experience—but permission. It’s permission to color outside the lines and to be who you really are. It’s not just gay people who have to come out of their closets. We’re all in our closets. They’ve just given us a good metaphor for what we all have to do. We’re all afraid to come out of our various closets. It’s not the need to be outrageous or rebellious. It’s so much better than that. It’s just permission to be that image and likeness of God that you really are. You are unlike any other image or likeness. It is as if God is saying, “I’m expecting you to return to me simply and totally as you really are!”

Richard Rohr,
from Following the Mystics through the Narrow Gate - Seeing God in All Things


halitosis research
body odor petition
MEBO Research

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