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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Wednesday, December 28, 2011

Presenting MEBO UK’s new Assistant Executive Director

It is with great pleasure that I announce Adrian J. McClay’s acceptance of the post of Assitant Executive Director of our not-for-profit Limited by Guarantee Company, MEBO Research (MEBO UK).

AJ's enthusiasm is inspiring and energizing, or should I say, “energising” as our British friends would say. He is now registered with this title with the Companies House of England and Wales.

Right before he left on holiday, AJ went over some ideas he had been thinking about, which he had noted on a piece of paper. This is what he said,

  1. He would like to unite the various body odor and halitosis organizations and forums, though remaining separate entities, to work together as one for common causes.
  2. AJ would like to kick off a monthly online MEBO UK Newsletter project. And as we brainstormed about this very exciting idea, we touched upon the importance of not only giving the news about what’s going on with MEBO, but also about any event or project that may be happening in the other forums and other bb & bo organizations, whether fundraising drives, meetups, organizing press events, testing or research programs, etc. – the sky is the limit! And of course, to complete this picture, I would LOVE it if this expansive effort would also receive input from other language sites as well.
  3. As soon as Dr. Cheryl Fields, MEBO US Community Outreach Director heard about AJ's interest in doing the MEBO UK Newsletter, she jumped with excitement about doing a sister MEBO US Newsletter, and she’s looking forward to meet with AJ to discuss this further when he returns after New Years Eve. This is a perfect example of how excitement is contagious. Cheryl had mentioned starting a Newsletter before in the past, but now doing it with in conjunction with someone else makes it even more fun!
  4. After Jo Jo in Seattle organized the Skunkhugs Skype Group to brainstorm on MEBO’s Raising awareness campaign, meetups, testing/research programs and fundraising projects, Jo Jo, who is also a moderator in Jimi’s Bad Breath Halitosis.com forum, is going to start a Newsletter for Jimi’s site using the same inter-organizational platform with Jimi’s consent.
  5. AJ is also very interested in pursuing all avenues to ensure that MEBO UK will become a Charity in England and Wales, as MEBO currently is in the US.
  6. Both AJ and I are keenly interested in developing the MEBO UK directorship with additional proactive directors so that we can expand our reach to all the countries in the Eastern Hemisphere. Obviously, directors of the UK company do not have to live in the UK, as I live in Miami, and the same goes for the US company. Let's think outside the box so the sky will be the limit!


These ideas that AJ presented are only scratching the surface of his innovative thinking, and I am looking forward to his return to begin our new venture of developing MEBO in the UK and the whole of the Eastern Hemisphere. Anyone interested in being a part of this pioneering work for MEBO, please drop me a line at maria.delatorre@meboresearch.org.


WELCOME, ADRIAN !
IT’S LOVELY HAVING YOU !!!



María

halitosis research
María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition

body odor petition
MEBO Research

1 comments:

Anonymous said...

Welcome Aj =D
Lets make good Stuff Happen .

J

Dec 27, 2011, 6:02:00 AM
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