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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, January 29, 2012

What I love about our new Skunkhungs Skype Group

I was reading most of the chat today in our Skype Group, and I just couldn't help but feel excited about the fact that the rhetoric is so diverse! It is so intellectually stimulating! It also makes me realize that MEBO has been very focused on systemic, metabolic, and genetic causes of body odor, and so much more needs to be explored. Even though we barely scratched the surface of environmental factors with our Gut Dysbiosis exploratory study, there is so much info in the IBS forum that I have been unaware of. I hope to learn about all the diversity of theories that exists on what could possibly be causing body odor.

Comments from MEBO UK's Scientific Director, Colin Harvey-Woodworth in "bb & bo group" on Friday, January 27, 2012,:

[1:50:09 PM] mmx ( Hi Maria. Whilst MEBO's clinical research will remain directed towards systemic malodor, if we are to become experts in "malodorology/ foetorology", we will still intimate knowledge of all the diagnoses that make up the spectrum of malodor conditions. As such, even a "simple" causes of malodor (such as intraoral halitosis or innocent malodorous flatus secondary to SIBO or gut dysbiosys) will need to be identified and successuflly treated. We will need to have these skills if we are to open a malodor clinic and research center, to successfully exclude the conditions during the differential diagnosis. My own background has been from the IBS forum which I joined 6 months ago. I have gone from being ignorant of many of these topics to having detailed knowledge of many of the conditions during this time. Hollistic medicine - considering the patient as a whole person rather than a collection of problems and diagnoses is most certainly the way forward. Personally I believe that the field of gastroeterology would best serve as a introduction to the maldodorology. Further more, not only are these concepts intimately linked with secondary-to- dysbiosis "overload" cases of systemic odor like secondary TMAU, but detailed knowledge of nutrition also comes into to play when understanding the dietary protocols for management.
[1:52:08 PM] mmx ( I have defined the skeleton of the spectrum of malodor conditions in the contents page of "Foetor Medicinae" we just need to fill in all the gaps and expand all the sections in the classification.

There is not only one cause for all conditions or only one cause for each individual. Perhaps, since the body works as a whole, when one aspect of our body goes off, the others are also affected resulting in a domino effect.

I am most grateful that JoJo organized this skype group and reached out to all the forums. We have much to learn from each other, and we will do very well to keep an open mind, and to crave from each other what seems to be radically new ideas. By opening our minds and expanding our knowledge, we may very well encounter a few AHA moments.

Everyone is welcome to join this Skype Group and to participate in our discussion. We welcome new members with open arms.


halitosis research
María de la Torre
Founder and Executive Director

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Anonymous said...

The Skunkhugs group is proud to be of service to anyone . Its my hope to help join the various groups to push for common goals .
Thank you so much Maria !!

Jan 29, 2012, 3:00:00 PM
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