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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, February 6, 2012


CLICK ON "Post Comment" below in this post.

Interview with Arun Nagrath
Thames Festival 2009

There have been a number of sufferers who write to MEBO asking if we can help them find people in their area that would be interested in meeting up. For this reason, I have created this page in our blog. There are 2 ways we can get closer to other sufferers in our area and around the world.
  1. Anyone interested could just write a comment (click below). In your comment, please write your name or username and a contact where you could be reached if anyone would like to meet with you.
  2. Another possibility for sufferers from around the world to unite and bond is to register in our Skype Group by downloading the free version of Skype and inviting Skunkhugs to your contact list. You can write to him in Skype Chat explaining that you heard about this group in MEBO's blog. We currently have 46 sufferers in this group, and it seems to be active in chat discussions most of the day.
Join the International Body Odor & Halitosis Skype group Join through skype : username skunkhugs j members so far : 46 download skype (free version) create a free account Search for skunkhugsj : Make him a contact Or ask anyone in the group to add you to group
I hope this helps people from around the world get together. María María de la Torre Founder and Executive Director A Public Charity MEBO's Blog (English) El Blog de MEBO (español) MEBO Brasil - Blog (Portuguese)

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Anonymous said...

Go Arun! You are an inspiration. Bring on the 2012 London meet up...

Feb 7, 2012, 5:23:00 AM
Margaret said...

I was thinking of comong to London on 8th September, are you guys using any particular hotel?
Margaret Aug.12

Aug 27, 2012, 2:47:00 AM
Margaret59 said...

Hi, I should have attended the meet up in York earlier this year but bottled out. Is there another meet up due anytime soon as I would like to give it another go and hopefully have the courage to attend this time.

Margaret59. 07876 500520.

Apr 27, 2013, 4:37:00 PM
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