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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, March 4, 2012

How to use this blog for beginners 3

On October 19, 2008 when MEBO only had 300 posts in this blog, I wrote a post explaining to new readers how to best get access to general information written by experts on body odor conditions. And on April 19, 2011, I wrote a follow-up post with additional information. Today, MEBO Research's blog has 1,045 posts, with a great deal more information, making it a little more difficult for sufferers to find information they may be looking for. I recommend that readers use the "Labels & blog search" engine found in the center-bar of the blog to find keywords you may be interested in.

There is also the menubar on top of this blog to help new readers find their way around. Some of the sites I recommend are the "Posts of note," "MEBO Community Outreach and Public Relations US & UK posts," "Videos," and "Campaigns." The following are some excerpts of the previous post on "How to use this blog for beginners 2"

Back on October 19, 2008, when the blog only had 300 posts, I published a post in this blog entitled, “How to use this blog : for beginners.” Now the blog has 864 posts, and we have grown so much as a community who has sought for and acquired so much more information, and who has been richly blessed with the support and guidance of so many experts. So now, we have so much more new information to offer, that I struggle to find a way to introduce all this information to a newcomer. Where do we begin?

Well we can still refer to the great introductory references noted in the previous post, such as,
Aruns overview on body odor and halitosis (Note: the MSN body odor support group has now moved to a new forum obtained for us by Arun, ). We can also refer to MEBO Research’s website in which discussion on the different body odor conditions are addressed in the Body Odor section and the Trimethylaminuria (TMAU) section where we feature a PowerPoint presentation given to MEBO Research by the renown Dr. Elizabeth Shephard on FMO3 enzyme and TMAU for viewing in the conference part of our Washington DC Meetup 2011. This site also has a Other Systemic Body Odor Conditions section that you might also find interesting.

Going back to this blog, you can browse through the Interviews with Experts section (scroll down to see all posts), in which experts have kindly given us answers to many of our questions. Some interviews are easier to understand than others, but it time, things will begin to make more sense, and you will begin to understand your odor condition better. It is in understanding our respective body odor condition that leads us to determining what odor-management protocol to follow to reduce our body odor.

Equally as important to determining the degree of odor, we also do need to become informed on the sensitivity, or lack of sensitivity of the human olfactory system. The post, “Do they smell me or not?” attempts to address this question.

This leads us to some suggestions on some blog posts on TMAU odor-management protocols recommended by the US National Institutes of Health (NIH), and its variations adapted by different cultures. The value of probiotics and prebiotics is also stressed to help with gut flora imbalances (gut dysbiosis), which may have odor-producing microorganisms overpopulating in our gut, irritating the semipermeable wall, thus allowing larger molecules to filter through to the bloodstream, that perhaps should not do so under normal condition. Also, there are TMA and hydrogen sulfide odor-producing bacteria in the gut, vagina, and dorsal tongue that have been treated with probiotics (in some cases successfully).

You will find that there are many posts written on bromhidrosis, hyperhidrosis, halitosis, and foot odor.

Currently, MEBO will soon be launching the MEBO TMAU Test Program, and we are accepting applications to be put on a waitlist. MEBO will also soon be launching our formal Alveolar Breath Research Study, that will look for other odorous volatile organic compounds that come from the lungs to determine what other possible metabolic deficiencies body odor sufferers may be experiencing. The requisition form for this scientific study will soon become available.

MEBO Research welcomes you to our very active community. Please join us in our Skype group chats, that seems to be ongoing almost 24/7. This post explains how to join this group through Skype, and displays the social calendar for our community.

Welcome to our community!

María de la Torre
Founder and Executive Director

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anmegrl said...

Thanks for the post. Found a lot of informative articles.

Mar 4, 2012, 10:49:00 PM
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