Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, March 22, 2012

TMAU audio story on BBC World Service and PRI stations

tmau story on bbc world service and pri
TMAU story on 
Trimethylaminuria audio story on the website
To be aired on BBC World Service and PRI
Scheduled for BBC World Service 28 March 12

Features owner of and FMO researchers Professors Ian Phillips and Elizabeth Shephard

Link to audio : TMAU story on website

Thanks to the bravery of the owner of forum and to the kindness of Professors Ian Phillips and Elizabeth Shephard, a journalist, Ari Daniel Shapiro, has been able to compile a short but interesting audio program on a personal TMAU story for the public service website, ''. The program will be aired on the BBC World Service sometime on the 28th March, and presumably on PBS too, as they pool certain stories.

Our special thanks go to the owner of the forum who does so much on behalf of our community, and who has bravely volunteered for this story, which will result in more awareness of TMAU and the concept of systemic body odors/halitosis.

Please note on the '' website you can hear 2 audio programs. The official article itself, and further down an audio article on 'behind the story'.

About Dr. Ian Phillips,

We read in the Queen Mary University of London Public Radio International news about Professor Ian Phillips being a co-discoverer of the TMAU gene, and his frustration with it still not leading to a solution for patients,

Genetic testing opens doors - but doesn't always lead to solutions
Public Radio International

School of Biological and Chemical Sciences: Professor Ian Philips

Genetic testing opens doors -- but doesn't always lead to solutions

Public Radio International
Professor Ian Phillips is a co-discoverer of the TMAU gene, a disorder in which people are unable to complete the metabolism of a small molecule called trimethylamine. While most people break down trimethylamine in the liver, people with TMAU excrete the molecule in their urine, breath, and sweat, often resulting in a fish odour. In an article on sufferer Grahame Lancaster, Professor Phillips comments that he can’t convince funding agencies to invest in the research needed to develop a cure. “It’s frustrating because, having identified the genetic basis of the disease, we are no longer able to follow that up in any meaningful way that would be of use for the patients,” he says.

related links forum
TMAU story on PBS NOVA website
TMAU audio and text on website


Post a Comment