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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, April 23, 2012

Alveolar breath test for systemic body odor/halitosis in Chicago : A message from Mike

Below is a message from MEBO's Managing Director, Mike, who last weekend oversaw test sampling for the MEBO Alveolar breath exploratory study for systemic body odor and halitosis in Chicago. This was the first of hopefully many samplings which will take place in various locations. If you are interested in testing in a big city near you you can contact Mike at 
Breath tests were conducted over the weekend in Chicago, and the BCA will now travel to Miami. I want to say thank you to everyone I met over the weekend.  It was memorable hearing everyone’s story. I also want to thank those who traveled far to get to Chicago.
Although participation was not what I had hoped for the initial launch of the program, I want to thank everyone that simply showed up to check out the BCA equipment and to learn more about it. Not only will we learn a tremendous amount from this research, each sufferer will receive their own detailed reports. Each tester will receive 3 reports.
Top 20 VOCs
Patient Sample Full Results
See Samples below

I also want to pass along a message from the Menssana Program Director.
Menssana Research is excited to be partnering with MEBO to offer a breath test for body malodor. We understand that this condition has been difficult to diagnose and only a subset of subjects afflicted test positive for Trimethylaminuria (TMAU), thereby establishing an urgent need for alternative diagnostic and screening options.
With this collaborative study we are hoping to find a unique suite of Volatile Organic Compounds (VOCs) that can be detected in the alveolar breath of affected individuals using our Breath Collection Apparatus (BCA 5.0) which will further research in this area by providing the necessary feasibility data to fund a larger human clinical study in the future.
With warm regards,
Jaime Blais, PhD
Program Manager


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