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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Monday, May 21, 2012

Aurametrix Community Forum


Announcing the new
Aurametrix Community Forum

Aurametrix website

MEBO's Scientific Director, Irene Gabashvili, Ph.D., invites us to participate in the Aurametrix Q&A Community Forum, anonymously if we like, so that we may bring forth any uncertainties that we would like other members and/or experts invited to answer them. The following is a message from Irene:


A new Q&A community is ready for you to join. All questions will be answered by other members of the community or by experts invited to answer them.

Aurametrix users don't need to create accounts to participate in the forum. They are signed up or logged in automatically - by clicking the orange "Q&A Community" button in Aura view. Aurametrix creates anonymous accounts with one-letter usernames. Each user has a profile where they can upload a picture, display their questions and answers, followers and points. Users can click on "Post as Anonymous" option when asking or answering if they want to remain completely anonymous and don't display this activity on their pages.

Aurametrix users don't need to create accounts to participate in the forum
Every question gives 2 points and every answer gives 1 point. Other users can upvote and downvote answers, thank for answers and follow users and topics. Users will be also earning badges, details to be announced later.

You can use twitter, facebook and linkedin profiles to log in
In order to participate in forum discussions without logging into Aurametrix, you can create an additional account at forum.aurametrix.com with the user name of your choice. You will be able to sign up for email notifications about new comments and answers to your questions or your favorite topics. You can use twitter, facebook and linkedin profiles to log in and ask your connections to answer questions.

You can easily navigate the site, browse existing topics, create new ones, learn and help others. Enjoy!


Thanks for the opportunity you give us to have a reliable place where we can present our questions and concerns, and where we can expect them to be understood and addressed in a sensible and professional manner.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

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