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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, May 21, 2012

Aurametrix Community Forum

Announcing the new
Aurametrix Community Forum

Aurametrix website

MEBO's Scientific Director, Irene Gabashvili, Ph.D., invites us to participate in the Aurametrix Q&A Community Forum, anonymously if we like, so that we may bring forth any uncertainties that we would like other members and/or experts invited to answer them. The following is a message from Irene:

A new Q&A community is ready for you to join. All questions will be answered by other members of the community or by experts invited to answer them.

Aurametrix users don't need to create accounts to participate in the forum. They are signed up or logged in automatically - by clicking the orange "Q&A Community" button in Aura view. Aurametrix creates anonymous accounts with one-letter usernames. Each user has a profile where they can upload a picture, display their questions and answers, followers and points. Users can click on "Post as Anonymous" option when asking or answering if they want to remain completely anonymous and don't display this activity on their pages.

Aurametrix users don't need to create accounts to participate in the forum
Every question gives 2 points and every answer gives 1 point. Other users can upvote and downvote answers, thank for answers and follow users and topics. Users will be also earning badges, details to be announced later.

You can use twitter, facebook and linkedin profiles to log in
In order to participate in forum discussions without logging into Aurametrix, you can create an additional account at with the user name of your choice. You will be able to sign up for email notifications about new comments and answers to your questions or your favorite topics. You can use twitter, facebook and linkedin profiles to log in and ask your connections to answer questions.

You can easily navigate the site, browse existing topics, create new ones, learn and help others. Enjoy!

Thanks for the opportunity you give us to have a reliable place where we can present our questions and concerns, and where we can expect them to be understood and addressed in a sensible and professional manner.


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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