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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, August 17, 2012

Please join the webinar sponsored by RareConnect, a EURORDIS & NORD Partnership

19th AUG
1pm UK/6pm EST

Click here to go to Eurordis - webinar room for TMAU/FMO3 webinars

Note : Use a nickname if concerned about name being shown. Webinars will be recorded.

As previously announced on August 9th in this blog, Series of FMO3/TMAU webinars from researchers and experts, RareConnect is sponsoring a TMAU & FMO3 Webinar series for us this coming Sunday, August 19th at 1:00pm EST (6:00pm UK time). Everyone is invited to attend.

RareConnect is a partnership project of EURORDIS and NORD, which provides a platform for rare disease patient organization to develop online communities across continents and languages. Therefore, this webinar is not a project of any particular body/breath malodor organization or forum, but rather, we are all invited by RareConnect to come together as a community with common interests and concerns to tell the world our story.

If you would like to present your questions in advance, you may do so in the RareConnect site, or you can just join the webinar by going to the Eurordis Rare Connect webinar room for the TMAU/FMO3 webinar.

    This first webinar is Rob’s debut to our international community, in which he will tell us about EURORDIS and NORD, and all the wonderful tools and opportunities it provides us to help us with our cause. As part of the Communication team, Robert Pleticha is an Online Patient Communities Manager at EURORDIS, and he will be describing the International TMAU Community on RareConnect.

    "Is it possible to use the media effectively in malodour sufferers' struggle for human right?" As a community leader, Karen has spearheaded the International Raising Awareness Campaign in the UK medical system, work with UK DUETs, NHS Evidence, National Institute for Health and Clinical Excellence, to publish 10 body odor related uncertainties / questions, now found in the Library of NHS UK database, about the effects of treatment for TMAU. She has authored an article, My body produces an offensively pungent chemical, published in InnovAiT 2012; doi: 10.1093/innovait/ins093, of the Oxford Journals on May 16, 2012.

Let’s give Rob and Karen our warm welcoming support and our appreciation for making accessible to us this platform to achieve our aims, to promote research and to provide us with a network that could potentially assist us in achieving our goal.

Hope to see as many visitors as possible in this first event.


María de la Torre
Founder and Executive Director

A Public Charity
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Anonymous said...

maybe there should be a "will you be joining in?" sidebar to show how many will be logging in .

Aug 17, 2012, 9:58:00 PM
Anonymous said...

The last webinar we had on microbes and us gave us the opportunity to hear a lecture about microbes. But the best part was being able to bring it to a sufferer's primary concern with the Q&A session where sufferers asked many pertinent questions that Irene answered well.

Aug 18, 2012, 9:47:00 AM
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