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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, September 30, 2012

Why test through MEBO TMAU Test Program?

Support THE MEBO TMAU Test Program

On August 31, 2012 MEBO Research received the Primary and Secondary TMAU Test results of a batch of 37 samples, and on September 14th, sent the lab another batch of 24 samples. MEBO sends individual results (Primary and Secondary TMAU positives first) with information on TMAU for their physicians to be able to provide the proper treatment. We currently have 18 kits in the hands of sufferers who will be shipping their samples to MEBO’s Headquarters in Miami, and receive new Requisition Forms daily.

  1. Why can the MEBO TMAU Test Program offer the TMAU Test at such a low price?
    • The lab and MEBO Research have agreed on the low test cost on the condition that MEBO ships samples in batches of 15 to 20 samples or more to lab.
    • All work performed by the MEBO staff is volunteer work with no compensation.
  2. Why did MEBO volunteers offer to do the administrative work without personal compensation for the MEBO TMAU Test Program?
    • MEBO Research is a Public Charity, which by definition means that a substantial part of its income, directly or indirectly, comes from the general public or from the government to provide social services. Providing this low-cost TMAU Testing opportunity is one way MEBO can help our substantially underemployed or unemployed community around the world. Too many sufferers experience employment and financial obstacles, and for these sufferers to do their test may potentially mean to have to chose to either pay rent, food, or to pay for the test.
    • Any sufferer who tests through MEBO Research supports these aims in helping to create a batch of 15 to 20 samples that would consequently be sent to the lab sooner than later.
    • The MEBO TMAU Test Program has gone to great length to provide this test to sufferers throughout the world, as distant as UPS or FedEx can deliver to. Sufferers in most countries have NEVER had the opportunity to do a TMAU test, and have NEVER had the resource to do anything to help himself or herself, thus being forced to bear a life of misery living with this condition without any help or guidance.

TMAU Test Requisition Form
$150 plus roundtrip shipping
click here

MEBO RESEARCH IS A 501(c)3 Public Charity: Not all 501(c)3 Charities qualify for Public Charity status. The types of 501(c)3 organizations are: Religious, Educational, Charitable, Scientific, Literary, Testing for Public Safety, to Foster National or International Amateur Sports Competition, or Prevention of Cruelty to Children or Animals Organizations. All charities are further subdivided, however, between public charities, which receive broad public support from gifts or fees, and private foundations. MEBO Research has been classified as a public charity by the Internal Revenue Service (IRS) as "not a private foundation," as it receives, or commits to receive, a substantial part of its income, directly or indirectly, from the general public or from the government. The public support must be fairly broad, not limited to a few individuals or families.

Please donate to this and other
MEBO Research Public Service efforts

I would like to extend my heart-felt gratitude to every one of the many people around the world that have dedicated so much of their valuable time and hard-earned money towards this end and for the strong support MEBO Research has received all these past years.


María de la Torre
Founder and Executive Director

A Public Charity
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