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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, October 23, 2012

Many are surprised with test results


MEBO TMAU TEST RESULTS

MEBO Research received the TMAU test results of a batch of 24 samples.

there are so many sufferers that are surprised with their test results from the lab.
The benefit of each sufferer having obtained his or her test results is that now, each has a better picture of what causes his or her odor or what is not a cause of the odor. This knowledge helps each sufferer decide which protocol to apply to his or her daily life. There are many other diagnostic tests to be designed by experts to answer all our questions, but at the very least, this one answers some of them.

WE CAN ALL BE PART OF THE SOLUTION!

All sufferer need to appreciate that they contribute to finding answers by participating in tests and research.
What I find most interesting about the experience of TMAU testing is that there are so many sufferers that are surprised with their test results. So many were on restrictive diets they really didn't need because their FMO3 enzyme function is actually very strong. Others now know that they most certainly need to support research into identifying and understanding, with microbiome research, the life processes of the gut bacteria that converts choline into TMA, in order to then find ways to eradicate or control it. Yet, the larger group now knows that they must be part of new research that explores other causes of odor conditions. All sufferers need to find scientifically based answers obtained from the TMAU test and from as many research programs carried out by renowned experts, as possible. All sufferer needs to appreciate that they contribute to finding answers by participating in tests and research. We can all be part of the solution! Please join me in doing so.


What mental outlook is the most likely to help sufferers find solutions to their condition?


  • Each sufferer can shift from feeling helpless to feeling empowered by being actively involved in testing and research, thus pursuing personal answers as well as providing research data to our community's quest to find a cure for all types of body and breath odor conditions.
  • Let go of pre-conceived beliefs of what you are convinced is the cause of your problems, and open your mind to take advantage of ALL possible tests that may become available to sufferers in the not so distant future, starting with the TMAU Test.
  • Be completely cognizant that only scientific testing can rule out or confirm any condition! Any opinion based on one's “feelings” or unscientific sources are questionable at best.


Please join and support MEBO Research and any other reputable organization that pursues research to discover and to understand all forms of odor conditions. Together we can obtain the much needed research into ALL POSSIBLE TYPES OF BODY/BREATH ODOR CONDITIONS.

Individually, we can only fabricate in our minds
what the cause may be...

UNITED, WE CAN FIND A CURE!

Below is the breakdown of the results of this batch of 24 sample:




Statistics of the 2nd Results Batch of 24 samples

1 sample = 4.17%: Primary TMAU (DNA test recommended for verification)
6 samples = 25%: Secondary TMAU
1 sample = 4.17%: Secondary borderline Primary recommended to re-test
16 samples = 66.66%: Negative

TMAU Test Requisition Form
$150 plus roundtrip shipping

María

María de la Torre
Founder and Executive Director

A Public Charity
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maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

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