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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, October 23, 2012

Many are surprised with test results


MEBO Research received the TMAU test results of a batch of 24 samples.

there are so many sufferers that are surprised with their test results from the lab.
The benefit of each sufferer having obtained his or her test results is that now, each has a better picture of what causes his or her odor or what is not a cause of the odor. This knowledge helps each sufferer decide which protocol to apply to his or her daily life. There are many other diagnostic tests to be designed by experts to answer all our questions, but at the very least, this one answers some of them.


All sufferer need to appreciate that they contribute to finding answers by participating in tests and research.
What I find most interesting about the experience of TMAU testing is that there are so many sufferers that are surprised with their test results. So many were on restrictive diets they really didn't need because their FMO3 enzyme function is actually very strong. Others now know that they most certainly need to support research into identifying and understanding, with microbiome research, the life processes of the gut bacteria that converts choline into TMA, in order to then find ways to eradicate or control it. Yet, the larger group now knows that they must be part of new research that explores other causes of odor conditions. All sufferers need to find scientifically based answers obtained from the TMAU test and from as many research programs carried out by renowned experts, as possible. All sufferer needs to appreciate that they contribute to finding answers by participating in tests and research. We can all be part of the solution! Please join me in doing so.

What mental outlook is the most likely to help sufferers find solutions to their condition?

  • Each sufferer can shift from feeling helpless to feeling empowered by being actively involved in testing and research, thus pursuing personal answers as well as providing research data to our community's quest to find a cure for all types of body and breath odor conditions.
  • Let go of pre-conceived beliefs of what you are convinced is the cause of your problems, and open your mind to take advantage of ALL possible tests that may become available to sufferers in the not so distant future, starting with the TMAU Test.
  • Be completely cognizant that only scientific testing can rule out or confirm any condition! Any opinion based on one's “feelings” or unscientific sources are questionable at best.

Please join and support MEBO Research and any other reputable organization that pursues research to discover and to understand all forms of odor conditions. Together we can obtain the much needed research into ALL POSSIBLE TYPES OF BODY/BREATH ODOR CONDITIONS.

Individually, we can only fabricate in our minds
what the cause may be...


Below is the breakdown of the results of this batch of 24 sample:

Statistics of the 2nd Results Batch of 24 samples

1 sample = 4.17%: Primary TMAU (DNA test recommended for verification)
6 samples = 25%: Secondary TMAU
1 sample = 4.17%: Secondary borderline Primary recommended to re-test
16 samples = 66.66%: Negative

TMAU Test Requisition Form
$150 plus roundtrip shipping


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