Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, November 20, 2012

Last chance for Europeans to participate in Alveolar Breath Exploratory Study

ELEVEN (11) DAYS FROM TODAY, Menssana Research will again return to London and Nottingham England to collect more breath samples from body and breath malodor sufferers for the MEBO-Menssana Alveolar Breath Exploratory Study (scroll down to see all posts).

DATES IN LONDON:
  1. Saturday, December 1st, afternoon & evening
  2. Sunday, December 2nd, morning and if necessary, early afternoon.
Please contact MEBO UK's Assistant Executive Director, AJ,
at aj.mcclay@meboresearch.org to schedule sample collection in London, so that you won't have to wait very long to collect your breath sample.


LOCATION IN LONDON:
The Guoman Tower Hotel
St. Katharine’s Way
London E1W 1LD
+44 845 305 8335


DATES IN NOTTINGHAM:
A few days before and/or after the London session, the instrument will be in Nottingham. AJ is happy to make this opportunity available to any sufferer that wishes to give their breath sample. Please contact AJ at aj.mcclay@meboresearch.org to make arrangements for sample collection in Nottingham.

WHAT IS INVOLVED IN THE TEST/STUDY PROCESS?
Dr. Phillips assures us that this test is sensitive enough to detect alveolar volatile organic compounds (VOCs), or odorous chemicals, that flow in our blood and comes out in our breath, as well as other “cleansing organs” of our body.
The primary focus of the test/study selected is not only to test for systemic halitosis, also known as alveolar halitosis, or bloodborne halitosis, but primarily to identify metabolic malfunctions. By determining the specific chemicals detected in each person’s alveolar breath, and by comparing them to the control group, Dr. Phillip will be able to identify in his study which VOCs are more elevated in sufferers of body odor conditions of our community and which metabolic pathways are involved.

With such an impressive level of sensitivity, MEBO became very interested and enthusiastic in pursuing this type of testing for our community. Dr. Phillips assures us that this test is sensitive enough to detect some metabolic deficiencies through the detection of alveolar chemicals, which may include volatile organic compounds (VOCs), or odorous chemicals, that flow in our blood and comes out in our breath, as well as other “cleansing organs” of our body.

WHAT WILL BE DONE WITH THE TEST RESULTS?
As always, MEBO enjoys the advisement and guidance of MEBO's experts advisors in the United States and United Kingdom, who have already offered to assist MEBO in whichever way they can, in addition to Dr. Phillips and his staff.

The following are initial questions to be addressed in follow-up studies once data has been collected from the VOCs.
  1. Are the VOCs produced by microorganisms in our gut, and if so, which ones?
  2. Are the VOCs detected in elevated levels the end product of a faulty metabolic system, and if so, which enzymes are involved?
  3. Is there a genetic cause for these elevated levels of particular VOCs?
  4. What treatment protocol would apply to each type of VOC and its cause, as determined by the appropriate test(s)?
HOW WILL THIS BENEFIT THE SUFFERER WHO PAID FOR HIS/HER TEST?
Even though initially the sufferer will only receive a report indicating which VOCs are elevated in their breath, the full interpretation will not be received until the necessary studies addressing the questions above have been concluded.
Even though initially the sufferer will only receive a report indicating which VOCs are elevated in their breath, the full interpretation will not be received until the necessary studies addressing the questions above have been concluded. It is recommended that participants of this study keep their results with them, which may be revisited from time to time as this process unfolds. Not only will information be posted in MEBO’s Blog as it becomes available, so that the community may be informed, but each sufferer who tested will have the advantage of seeing through time how new discoveries relates to their respective test results.

Anyone interested in participating in this program is welcome to fill out the Requisition below.


MEBO Research International
Aveolar Breath Study
Provided by the
Menssana Research Inc

£250/GBP or €275/EUR




IN BRITISH POUND STERLING

IN EUROS


María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Please use your credit card to make your donation to MEBO.


Subscribe for latest posts : Enter your email address:

Delivered by FeedBurner


A EURORDIS and NORD Member Organization

0 comments:

Post a Comment