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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, November 19, 2012

TMAU webinar #4 : Dr Richard Mackay

TMAU webinar number 4 (organised by and TMAU advocates)

Date : Sunday 2nd Dec
Time :  7pm GMT

Guest Speaker : Dr Richard Mackay
Title of lecture : Laboratory testing for trimethylamine excretion

Webinar room is here : webinar room
Questions about the webinar :

The 4th TMAU webinar is taking place on Sunday 2nd Dec at 7pm GMT (check your timezone against GMT). We are pleased to announce that the guest speaker will be Dr Richard Mackay of Christchurch, New Zealand. We are most grateful to him for generously fitting the webinar into his schedule which means he will be speaking at 8am on Monday 3rd Dec his time.

Dr Richard Mackay wrote an excellent overview about TMAU which was published in 2011
Trimethylaminuria : Causes and Diagnosis of a Socially Distressing Condition

The webinar will be a lecture followed by a question and answer session.

related links : TMAU pages

previous webinars :
#1 : sufferer Karen ; 'is it possible to use the media effectively in odour sufferers' struggle for human rights ?'
#2 : Professers' Elizabeth Shephard & Ian Phillips ; 'FMO3 : bugs, genes, and drugs'
#3 : Dr Robin Lachmann and dieticians' Charlotte Ellerton and Heidi Chan ; 'Diagnosis and treatment of TMAU : The London experience'


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