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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Upcoming get-togethers

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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Monday, November 19, 2012

TMAU webinar #4 : Dr Richard Mackay

TMAU webinar number 4 (organised by and TMAU advocates)

Date : Sunday 2nd Dec
Time :  7pm GMT

Guest Speaker : Dr Richard Mackay
Title of lecture : Laboratory testing for trimethylamine excretion

Webinar room is here : webinar room
Questions about the webinar :

The 4th TMAU webinar is taking place on Sunday 2nd Dec at 7pm GMT (check your timezone against GMT). We are pleased to announce that the guest speaker will be Dr Richard Mackay of Christchurch, New Zealand. We are most grateful to him for generously fitting the webinar into his schedule which means he will be speaking at 8am on Monday 3rd Dec his time.

Dr Richard Mackay wrote an excellent overview about TMAU which was published in 2011
Trimethylaminuria : Causes and Diagnosis of a Socially Distressing Condition

The webinar will be a lecture followed by a question and answer session.

related links : TMAU pages

previous webinars :
#1 : sufferer Karen ; 'is it possible to use the media effectively in odour sufferers' struggle for human rights ?'
#2 : Professers' Elizabeth Shephard & Ian Phillips ; 'FMO3 : bugs, genes, and drugs'
#3 : Dr Robin Lachmann and dieticians' Charlotte Ellerton and Heidi Chan ; 'Diagnosis and treatment of TMAU : The London experience'


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