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MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, November 19, 2012

TMAU webinar #4 : Dr Richard Mackay

TMAU webinar number 4 (organised by rareconnect.org and TMAU advocates)

Date : Sunday 2nd Dec
Time :  7pm GMT

Guest Speaker : Dr Richard Mackay
Title of lecture : Laboratory testing for trimethylamine excretion

Webinar room is here : rareconnect.org webinar room
Questions about the webinar : robert.pleticha@eurordis.org

The 4th TMAU webinar is taking place on Sunday 2nd Dec at 7pm GMT (check your timezone against GMT). We are pleased to announce that the guest speaker will be Dr Richard Mackay of Christchurch, New Zealand. We are most grateful to him for generously fitting the webinar into his schedule which means he will be speaking at 8am on Monday 3rd Dec his time.

Dr Richard Mackay wrote an excellent overview about TMAU which was published in 2011
Trimethylaminuria : Causes and Diagnosis of a Socially Distressing Condition

The webinar will be a lecture followed by a question and answer session.


related links :
rareconnect.org TMAU pages

previous webinars :
#1 : sufferer Karen ; 'is it possible to use the media effectively in odour sufferers' struggle for human rights ?'
#2 : Professers' Elizabeth Shephard & Ian Phillips ; 'FMO3 : bugs, genes, and drugs'
#3 : Dr Robin Lachmann and dieticians' Charlotte Ellerton and Heidi Chan ; 'Diagnosis and treatment of TMAU : The London experience'

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