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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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to join : go to
or contact
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, November 14, 2012

MEBO Research, registered Patient Organization in ORPHANET


MEBO RESEARCH IS PROUD TO BE
A REGISTERED PATIENT ORGANIZATION OF

ORPHANET

There is no disease so rare
that it does not deserve attention

Orphanet is the reference portal for information on rare diseases and orphan drugs, for all audiences. Orphanet’s aim is to help improve the diagnosis, care and treatment of patients with rare diseases.



Orphanet services:

Orphanet offers a range of freely accessible services:
  1. An inventory of rare diseases and classification of diseases
  2. An encyclopaedia of rare diseases
  3. An inventory of orphan drugs at all stages of development, from EMA (European Medicines Agency) orphan designation to European market authorisation.
  4. A directory of specialised services, providing information on specialised clinics, medical laboratories, ongoing research projects, clinical trials, registries, networks, technological platforms and patient organisations, in the field of rare diseases, in each of the countries in Orphanet’s network.
  5. An assistance-to-diagnosis tool
  6. and many more

Orphanet offers a listing of Support Groups by Country, and a page listing all the labs in Europe that test for TMAU, and other websites.

MEBO Research is listed under the Disease group of Trimethylaminuria,

Orpha numberORPHA35056
Synonym(s)Fish-odor syndrome
PrevalenceUnknown
Inheritance
  • Autosomal recessive
  •  
  • Sporadic
Age of onsetVariable
ICD-10
  • E88.8
OMIM
UMLS
  • C0342739
MeSH
  • C536561
MedDRA
  • 10068233
SNOMED CT
  • 237959005

Another site in which information can be found on Trimethylaminuria is the Metabolic and Genetic Information Center,
This page references an article, The Clinical utility gene card for: Trimethylaminuria, written in the European Journal of Human Genetics (2012) 20, doi:10.1038/ejhg.2011.214; published online 30 November 2011, by MEBO's Scientific Advisor, Drs. Elizabeth Shephard, and colleagues, Drs. Ian R. Phillips and Eileen P Treacy. We thank Drs. Shephard, Phillips, and Treacy for their unending support and guidance to MEBO Research through the years.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

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