Organizing a Dallas/Fort Worth Weekly Support Group

ONE OF OUR VERY OWN is wanting to start a weekly support group in the Dallas/Fort Worth area. There are many sufferers in this area that have been asking for the opportunity to hold meetups or conference calls, and/or one-on-one communications with other sufferers in the area.

THIS IS IT -
the opportunity to develop our first "Western Group."

Most meetups seem to take place in the east, and for lack of a coordinator to organize one in Western USA, there's never been one out west.

This is it - the opportunity to develop our first "Western Group..." So, what do you say?

So, what do you say? Anyone interested in being a part of this opportunity can go the RareConnect.org site, which is a partnership of NORD and EURORDIS, and reply to alisha323's post. You would need to register to become a member of this site in order to post your reply. Another way to express interest would be to email me at, maria.delatorre@meboresearch.org, and I'll forward it to her.

The following is Alisha's open invitation the whole community:

Dallas/Fort Worth Weekly Support Group

I am interested in starting/joining a weekly support group in the Dallas/Fort Worth area for malodor sufferers of any kind. I was wanting to get one started before January 2013 because the holidays can be a hard time for some of us. If you would like to join or have any suggestions please respond.

Thank you,

Alisha

http://www.rareconnect.org/en/community/trimethylaminuria/forum

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María

María de la Torre
Founder and Executive Director

A Public Charity
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maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization