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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
Read more/less

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Monday, November 26, 2012

Organizing a Dallas/Fort Worth Weekly Support Group

ONE OF OUR VERY OWN is wanting to start a weekly support group in the Dallas/Fort Worth area. There are many sufferers in this area that have been asking for the opportunity to hold meetups or conference calls, and/or one-on-one communications with other sufferers in the area.


THIS IS IT -
the opportunity to develop our first "Western Group."

Most meetups seem to take place in the east, and for lack of a coordinator to organize one in Western USA, there's never been one out west.

This is it - the opportunity to develop our first "Western Group..." So, what do you say?
So, what do you say? Anyone interested in being a part of this opportunity can go the RareConnect.org site, which is a partnership of NORD and EURORDIS, and reply to alisha323's post. You would need to register to become a member of this site in order to post your reply. Another way to express interest would be to email me at, maria.delatorre@meboresearch.org, and I'll forward it to her.

The following is Alisha's open invitation the whole community:

Dallas/Fort Worth Weekly Support Group

I am interested in starting/joining a weekly support group in the Dallas/Fort Worth area for malodor sufferers of any kind. I was wanting to get one started before January 2013 because the holidays can be a hard time for some of us. If you would like to join or have any suggestions please respond.

Thank you,

Alisha



María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

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