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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Tuesday, February 12, 2013

Ranking of film visits, The Boy Who Smells Like Fish


RAISING AWARENESS
WITH RENOWNED ACTORS!


To purchase tickets, click here

As an international community, as we continue our efforts to raise awareness, we assertively continue to support the film, The Boy Who Smells Like Fish, as it competes in the Miami International Film Festival (MIFF) on March 2nd.

UPDATE:
I know we can easily place our film as the most visited. Please be a part of this.
the most visited film (online) is “After Lucia,” and the second-most visited is “The Boy Who Smells Like Fish, with EENIE MEENIE MINEY MOE trailing closely behind.” Let's make The Boy the NUMBER 1! The way to vote for our film to simply visit the page, and that counts as a visit. Ideally, if you would then add it to your calendar, click on “Like,” and tweet it if you can, that would be even better. You can share it with friends (other sufferers?) on facebook, or email your family and friends. By doing all this, we may very well be helping this film in the competition, and most importantly, we will call attention to the plight of all sufferers.

If you would like to see the ranking of the film, and how it is in relation to the other top films, you can visit, http://miami.festivalgenius.com/2013/films/theboywhosmellslikefish_analeinecalymayor_miami2013, and click on “Olympia Theater at the Gusman Center for the Performing Arts” venue.

I know we can easily place our film as the most visited. Please be a part of this.
Thanks for being a proactive member of our community,

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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