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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Wednesday, March 27, 2013

Meetup: Villa in Netherlands in July 2013

Boys and girls, children of all ages,
we are proud to introduce to you the first meetup in


"da Netherlands in july 2013"
(July 15th)

So I was going to visit a couple of sufferers in the summer, this has now escalated into a weeks long holiday. The plan is to meet on July 15th at Amsterdam airport where we will collect everyone. Then we will drive to a villa near Amsterdam. We have found a range of villas for between 6 and 10 people depending on how people confirm. The villas have pretty cool facilities including swimming pools and saunas, one is near the beach. Check out the links below.

It will all be self-catering, so people can choose the diet that most suits them.

The villas will give us a chance to work on our tans without having to feel self-conscious. Plus, I'll be getting my chefs hat on and getting the BBQ going. So during the day we can lounge around and have a laugh then at night we can scooter into Amsterdam and enjoy the night life. Obviously, as always, everyone is free to come and go as they please.


As this going to be a bit pricey, we are asking people to pay a deposit of £100 into Paypal account (hzw75@hotmail.com). We will then pay the balance on the property, and people can pay us the difference when they arrive. The villa prices range from 200-300 per person.

As we need to book asap to guarantee availability we are asking people to pay the deposit by the 7th of April.'

If anyone has any questions they can contact me, AJ, on Facebook, or give me a ring on 07564352288.


I think we all deserve to have some FUN!


http://www.homeaway.co.uk/p875139
http://www.holidaylettings.co.uk/rentals/amsterdam/94110
http://www.homeaway.co.uk/p514991


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