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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, April 20, 2013

My interview with ABC Affiliate, WTXL.TV

As part of MEBO Research's ongoing Raising Awareness Campaign, I was interviewed via Skype by Christina Reznack, Reporter at WTXL ABC27 in Tallahassee, Florida. The 2 minute story will air during their 6:00pm newscast on Wednesday, May 1st, and they will be running promotions for it on their social media and programming next week as well. Viewers in North Florida and South Georgia will be able to see it. Afterwards, the longer version of the interview will go up on the web immediately thereafter.

Throughout the years, ABC has made a very strong impact in our community. Had it not been for the ABC News, Primetime Medical Mysteries Story, "The Model Who Smells Like Dead Fish," Without ABC airing Camille's Story, I would not have discovered that trimethylaminuria (TMAU) exits. Primetime Medical Mysteries also aired a piece in 2009 on the the story of Cheryl Marshall's life with TMAU, aired on the Discovery Health channel in the episode, "The Boy Who Stopped Walking."

As a result of the information brought forth by ABC, a group of sufferers established five years ago an organized worldwide campaign, MEBO Research, registered in the US, England and Wales, to not only pursue research for TMAU, but to also initiate exploratory studies to discover other causes of idiopathic odor conditions. I would probably still be looking for some explanation without direction to an uncontrollable, life-altering condition, had it not been for ABC.

I would like to than Christina for reaching out to me and offering me this opportunity to tell our story.


María de la Torre
Founder and Executive Director

A Public Charity
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