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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, April 29, 2013

TMAU Test Results - 5th BATCH

Click here

TMAU Test Requisition Form
plus roundtrip shipping
No additional cost throughout the test process will be incurred
after initial payment of test & round trip shipping

BATCH#5 (April 25, 2013).

Click on icon to see chart
Please click on the the TMAU Test Results Chart icon (on the right) of the 121 TMAU tests from Batches #1-5 performed with Liquid Chromatography since the commencement of this program in June 2012. By seeing where your figures fall in comparison to other sufferers who tested, you can get a better understanding of what role TMA plays in your odor condition.

NOTE: Please keep in mind that this table does not depict the figures of one individual on the same row, and consequently, the significant relationship among the TMA levels, TMAO levels, and the TMA/TMAO Ratio of any one particular individual is not noted except for those of our three volunteers noted on the chart; this was done intentionally to protect the privacy of each participant.

Primary TMAU Positives: 3.31% (4 of 121)
Secondary TMAU Positives: 25.62% (31 of 121)
TOTAL TMAU POSITIVE: 28.93% (35 of 121)

How results are interpreted:

  • TMAU1 can only be truly confirmed by FMO3 enzyme analysis (difficult because a liver biopsy would be needed) or DNA analysis.
  • TMAU2 must be a diagnosis by exclusion.
  • TMA-oxide can be used as a guide, but is not diagnostic for TMAU2.
  • Therefore, if TMA is increased and TMA-oxide is normal and (as in many cases) FMO3 is not proven to be affected the diagnosis must be TMAU2 by exclusion.
  • If TMA is normal and TMA-oxide is significantly high, suggest a re-test following a choline load.

María de la Torre
Founder and Executive Director

A Public Charity (em português)
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