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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, June 3, 2013

CMS Overview of Health Insurance Marketplace for NORD Members

 For NORD Member Organizations

CMS to Provide Overview of Health Insurance Marketplace for NORD Members on June 11

Understanding the Health Insurance Marketplace

The Centers for Medicare and Medicaid Services Office of Communication will host a high-level overview of the Health Insurance Marketplace for NORD members on Thursday, June 11.

Please join us from 1 to 3 p.m. ET as we review how the Marketplace works, what it means for consumers and individuals, who is eligible to enroll, and how programs for people with limited incomes work.

This session will have two parts, a webinar and an audio call.  Please join the webinar ten minutes before the start of the event by clicking on the following URL:  https://webinar.cms.hhs.gov/healthinsurancemarketplacenord/.

To access the audio portion of the program, call  1-877-267-1577, and use meeting ID 1947.

Please feel free to share this information with your members.


María


María de la Torre
Founder and Executive Director

  A Public Charity
www.meboresearch.org
  maria.delatorre@meboresearch.org
  MEBO's Blog (English)
  El Blog de MEBO (español)
  The MEBO Forum


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A EURORDIS and NORD Member Organization 

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