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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, May 30, 2013

New Meet Up Group in Raleigh/Durham area in July


The Raleigh/Durham Group

,

We were very fortunate to have an attendee who had never been to one of MEBO’s annual conference.  She is a sufferer and is very much involved with a group called Food Addicts in Recovery Anonymous (FA), and her contribution to the group discussion on the proper selection of foods and self-control in responsible dieting enriched the quality of information exchanged. Anyone interested in learning more about eating habits and self-control, please visit the FA link, http://www.foodaddicts.org/ and/or email onrichar@gmail.com.

I am happy to say that she is working on organizing a new Meet Up Group in the Raleigh/Durham and surrounding area.  She would like me to begin announcing it in this blog as of now so that people may be aware of it in advance. 


Starting in July a New Meet Up Group In Raleigh/Durham and Surrounding Area. The location, date and time will be posted in June. Please send a email to onrichar@hotmail.com, if you interested in joining the group.

The date, time and location will be posted in June.  I encourage as many people as possible to attend this event.  More information will be forthcoming soon. 


Many sufferers have developed a fear of foods, whether we eat them or not. As a result, some give up certain foods unecessarily while others simply give up and eat anything and everything, and then feel terribly guilty when the odor kicks in. We don't have to live this way. We can learn to manage our foods so that we may live guilt-free as we strive to live odor-free, and still enjoy our foods and our lives! This is what her experience with FA, and her mature and caring personality can bring, as evident in the Memphis meetup conference. I highly recommend participation in this group.

María


María de la Torre
Founder and Executive Director

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