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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Sunday, October 6, 2013

New TMAU paper : Transient Massive Trimethylaminuria Associated with Food Protein-Induced Enterocolitis Syndrome

A new medical paper has been published on a case study of transient Trimethylaminuria in a 8 month old baby. The paper is by clinicians at the Department of Pediatrics, Division of Allergy, Immunology, and Pulmonary Medicine, Washington University School of Medicine, St. Louis.

Only the abstract can be seen for free, but the paper seems to link 'transient TMAU' in this case with 'intestinal permeability' (commonly referred to as 'leaky gut') due to allergies in proteins causing FPIES (see abstract).

In a brief read of the abstract it is not clear what their conclusions are, as they seem to suggest the TMAU is due to 'overload' due to limited FMO3 enzyme reserve capacity, rather than 'leaky gut', but further reading may make it clearer.

It would be interesting to find out if the St Louis hospital tests for TMAU.

Pubmed paper : Transient Massive Trimethylaminuria Associated with Food Protein-Induced Enterocolitis Syndrome


Anonymous said...

Can you contact them and ask them if they've considered it? and Test for it?

Jul 7, 2013, 9:32:00 AM
Anonymous said...

where do we find it so we can read it? did you post the link? the link posted, takes us to a general info page.

Jul 7, 2013, 9:34:00 AM
blogcontributor2 said...

I'm afraid there does not look to be any other free info other than the abstract at the moment. The summary is ahead of print and the paper will probably cost money to view when published.

The paper will be published in the Journal of inherited metabolic diseases

Jul 7, 2013, 1:32:00 PM
Anonymous said...

If you ask the authors, they might send it to you.

Jul 18, 2013, 2:20:00 AM
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