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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, October 6, 2013

New TMAU paper : Transient Massive Trimethylaminuria Associated with Food Protein-Induced Enterocolitis Syndrome

A new medical paper has been published on a case study of transient Trimethylaminuria in a 8 month old baby. The paper is by clinicians at the Department of Pediatrics, Division of Allergy, Immunology, and Pulmonary Medicine, Washington University School of Medicine, St. Louis.

Only the abstract can be seen for free, but the paper seems to link 'transient TMAU' in this case with 'intestinal permeability' (commonly referred to as 'leaky gut') due to allergies in proteins causing FPIES (see abstract).

In a brief read of the abstract it is not clear what their conclusions are, as they seem to suggest the TMAU is due to 'overload' due to limited FMO3 enzyme reserve capacity, rather than 'leaky gut', but further reading may make it clearer.

It would be interesting to find out if the St Louis hospital tests for TMAU.

Pubmed paper : Transient Massive Trimethylaminuria Associated with Food Protein-Induced Enterocolitis Syndrome


Anonymous said...

Can you contact them and ask them if they've considered it? and Test for it?

Jul 7, 2013, 9:32:00 AM
Anonymous said...

where do we find it so we can read it? did you post the link? the link posted, takes us to a general info page.

Jul 7, 2013, 9:34:00 AM
blogcontributor2 said...

I'm afraid there does not look to be any other free info other than the abstract at the moment. The summary is ahead of print and the paper will probably cost money to view when published.

The paper will be published in the Journal of inherited metabolic diseases

Jul 7, 2013, 1:32:00 PM
Anonymous said...

If you ask the authors, they might send it to you.

Jul 18, 2013, 2:20:00 AM
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