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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, September 10, 2013

Please participate in Halitosis Study

Please participate in the halitosis study conducted by Dr. Murat Aydin, DDS, PhD. Doctor of Philosophy in Microbiology. The instructions and answer form are embeded in this post for your use during the experiment.

NOTE FROM DR. AYDIN: Study participants should smell the same saliva that is first smelled and assessed at the beginning of the experiment. Participants should NOT spit again or smell a new saliva sample during the experiment. If you have done your test incorrectly, please let me know and those results will not be considered. Thank you.


Dr. Aydin has helped our international community in many ways, including writing a paper for this year's MEBO Annual Meetup and Conference held in Memphis, TN, entitled, “How can we understand whether halitosis comes from mouth or breath,” which describes the origin of Oral (malodor) Halitosis and Breath (malodor) Halitosis and the differences of their clinical signs. This paper presented excerpts from his book, Halitosis, In: Oral Microbiology,
Aydin M. Aydin M. (2012). Halitosis. In: Oral Microbiology. Aydin M, Mısırlıgil A. editors. Ankara: MN Medical & Nobel, p.97-105.

After listing some of the compounds released in the breath, he adds,

Most of them [the compounds] are end product of lipid, nitrogen, cholesterol, alcohol, carbohydrate, protein or aminoacid metabolism, oxidation of proteins, pancreatic insufficiency, carbohydrate malabsorption intolerance, abnormal gut flora, bacterial gut overload, liver or renal failure, or subclinic trimethylaminuria disease.

Distinction between Oral and Breath Halitosis: Both give similar sign of bad odor in the mouth and/or breath, but the difference is important for both diagnosis and treatment. This handout lists useful tools to distinguish between them, including the three points noted in the MEBO Blog post, "The MEBO Conference and Social Meetup in Memphis," scroll down to section, "HALITOSIS FROM MOUTH OR BREATH."

See handout for additional information.


María de la Torre
Founder and Executive Director

A Public Charity (em português)
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