Stand With NORD Against Government Shutdown
The NORD President and CEO asks all NORD member organizations to stand with NORD Against Government Shutdown. he tells us,
[the government shutdown is ] ...having significant, harmful effects on all of us in the rare disease community. Essential services that patients rely on are being threatened. Their decision earlier this year to sequester funding for essential agencies like the NIH and FDA is causing delays in the research, development and review of new therapies. This is especially troublesome because there is strong momentum favoring investment in rare diseases and orphan products. Now, with the Federal shutdown, these agencies cannot even function!
Peter asks us to contact our Congress persons and make them listen. He gives us a link of where we need to express our concerns. Please CLICK HERE to read his full message.
María
María de la TorreFounder and Executive Director
A Public Charity
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2 comments:
This is the reply I received from my US Senator, Marco Rubio!
Thank you for taking the time to contact me, please be advised due to the government shutdown, my office is currently closed. My office will respond to your concerns or resume work on your case as soon as the office reopens. In the interim, if you would like to leave a comment for me, you may still do so at 1-866-630-7106 (within Florida) or 202-224-3041.
Sincerely,
U.S. Senator Marco Rubio
Pls help me and my son.
We Invisible Disorder with and odor.
Depressed all the time