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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, October 1, 2013

TMAU webinar in Spanish hosted by RareConnect

6th Webinar on TMAU in Spanish

hosted by RareConnect

Our international TMAU community is profoundly grateful to RareConnect for all the support they have provided for our Raising Awareness Campaign, as well as in our search for a TMAU testing lab so that testing would be more accessible around the world, to have adequate treatment accessible, and to discover a cure.

In only one year, since September 2012, RareConnect has sponsored five (5) webinars (a series of online conferences) in English of professional experts in TMAU, a rare disease. RareConnect has included the trimetilaminuria community, in their website, in which 300 members have registered and more than 60 members from Spanish speaking countries. For this reason, RareConnect has offered to conduct the following webinar in Spanish.

6th Webinar on TMAU in Spanish

Date: October 24, 2013

at 17:00 (5:00pm) local time in Barcelona

*If you don't live in Spain and need to know the time of the webinar in your country, see here:

- Introduction to the webinar: the TMAU community in RareConnect
- Maria de la Torre - MEBO Research activities
- Dra. Mercedes Serrano - inborn TMAU, Guia Metabólica, information about the TMAU test
- Open discussion, Question & Answer session

The webinar will be recorded and published in Youtube for those who missed it and want to see it again.

Instructions to join the webinar:

1. To enter the webinar meeting room, click here.
2. Register as Guest (invited) with your name [or username]. No password is necessary.
3. Connect your headphones

For more information, you may contact

By the RareConnect team, published on September 26, 2013
Original post in Spanish
Translation by Maria de la Torre

María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

Una Asociación de EURORDIS y NORD 


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