6th Webinar on TMAU in Spanish
hosted by RareConnect
Our international TMAU community is profoundly grateful to RareConnect for all the support they have provided for our Raising Awareness Campaign, as well as in our search for a TMAU testing lab so that testing would be more accessible around the world, to have adequate treatment accessible, and to discover a cure.
In only one year, since September 2012, RareConnect has sponsored five (5) webinars (a series of online conferences) in English of professional experts in TMAU, a rare disease. RareConnect has included the trimetilaminuria community, in their website, in which 300 members have registered and more than 60 members from Spanish speaking countries. For this reason, RareConnect has offered to conduct the following webinar in Spanish.
Original post in Spanish
6th Webinar on TMAU in Spanish
Date: October 24, 2013
at 17:00 (5:00pm) local time in Barcelona
*If you don't live in Spain and need to know the time of the webinar in your country, see here: http://www.timeanddate.com/worldclock/converter.html
Program:
- Introduction to the webinar: the TMAU community in RareConnect
- Maria de la Torre - MEBO Research activities
- Dra. Mercedes Serrano - inborn TMAU, Guia Metabólica, information about the TMAU test
- Open discussion, Question & Answer session
The webinar will be recorded and published in Youtube for those who missed it and want to see it again.
Instructions to join the webinar:
1. To enter the webinar meeting room, click here.
2. Register as Guest (invited) with your name [or username]. No password is necessary.
3. Connect your headphones
For more information, you may contact marta.campabadal@eurordis.org
By the RareConnect team, published on September 26, 2013
Translation by Maria de la Torre
María de la Torre
Founder and Executive Director
A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)
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