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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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TMAU UK end total:262
TMAU UK ends 23/01/20
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USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, October 1, 2013

TMAU webinar in Spanish hosted by RareConnect

6th Webinar on TMAU in Spanish

hosted by RareConnect


Our international TMAU community is profoundly grateful to RareConnect for all the support they have provided for our Raising Awareness Campaign, as well as in our search for a TMAU testing lab so that testing would be more accessible around the world, to have adequate treatment accessible, and to discover a cure.

In only one year, since September 2012, RareConnect has sponsored five (5) webinars (a series of online conferences) in English of professional experts in TMAU, a rare disease. RareConnect has included the trimetilaminuria community, in their website, in which 300 members have registered and more than 60 members from Spanish speaking countries. For this reason, RareConnect has offered to conduct the following webinar in Spanish.



6th Webinar on TMAU in Spanish


Date: October 24, 2013

at 17:00 (5:00pm) local time in Barcelona

*If you don't live in Spain and need to know the time of the webinar in your country, see here: http://www.timeanddate.com/worldclock/converter.html


Program:
- Introduction to the webinar: the TMAU community in RareConnect
- Maria de la Torre - MEBO Research activities
- Dra. Mercedes Serrano - inborn TMAU, Guia Metabólica, information about the TMAU test
- Open discussion, Question & Answer session

The webinar will be recorded and published in Youtube for those who missed it and want to see it again.

Instructions to join the webinar:

1. To enter the webinar meeting room, click here.
2. Register as Guest (invited) with your name [or username]. No password is necessary.
3. Connect your headphones

For more information, you may contact marta.campabadal@eurordis.org

By the RareConnect team, published on September 26, 2013
Original post in Spanish
Translation by Maria de la Torre



María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)



Una Asociación de EURORDIS y NORD 

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