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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, December 10, 2013

Best Screenwriter Award Analein Cal y Mayor

Analeine Cal y Mayor
Best Screenwriter Award

The Women's International Film & Television Showcase
"Commerce, Creativity, Integrity, Passion"



For her sensitive tale of affliction and exclusion transformed to strength and acceptance through the power of love and understanding, Analeine Cal y Mayor has been chosen by TheWIFTS Foundation to receive the 2013 Best Screenplay Award.

On behalf of our MEBO community and all persons around the world whose lives have been deeply affected by Trimethylaminuria, I congratulate our dear friend and screenwriter, Analeine Cal y Mayor for her great achievement. Analeine has captured the spirit a sufferer of this condition since birth and the impact it has had on his family. Thank you Analeine for having taken on this very profound and complex theme and elevating it to a very special artistic expression.

The Film Director, Analeine Cal y Mayor worked with the main actor, Douglas Smith, who played Mica. She points out that it is not so important that the film strive to present that he is a man that smells of fish, but rather that she wants the character be a solitary man, and that he would be disagreeable, but not visually.

That he smells of fish is not as important, I want to create a rare and solitary person. I liked the fact that the disorder is not something visible. Douglas worked on his movements. These are people with very low self-esteem - those that have Trimethylaminuria. He worked on how to walk; he's a bit hunched. He worked on this, and I was interested in it not being visual.

Douglas said that the disorder of his character is very sad, and that one of the goals of the script was to give him a bittersweet and solitary quality throughout the story.
This film raises awareness, but above all, it is a call for tollerance.

THE BOY WHO
SMELLS LIKE FISH

See trailer'
Winner of Golden Trailer Award 2013

María de la Torre
Founder and Executive Director

A Public Charity
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www.mebo.com.br/ (em português)
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