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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Friday, March 28, 2014

BORC Conference Call with Dr. Lachmann


We thank Lisa Marie for her proactive work in the TMAU community. Lisa has now reached "over the pond" to set up a conference call with Dr. Robin Lachmann, M.D., who treats most of the TMAU cases in the UK, and who has done a webinar with two of his unit's dieticians, Charlotte Ellerton and Heidi Chan sponsored by RareConnect in November, 2012. Dr. Lachmann has also been interviewed in multiple documentaries in the UK in which sufferers give their testimonies about living with TMAU. Our whole international community extends our profound gratitude to Dr. Lachmann for taking time to educate and guide us as well as for being so proactive in raising awareness.

INFORMATION ABOUT THE CONFERENCE

BORC Conference Call with Dr. Lachmann, PhD Metabolic Unit
Initiated through BORC (A private support group on Facebook)

Conference call With Dr. Robin Lachmann, PhD
Topic Discussions: Trimethylaminuria, Management, & Testing Process.

Speaker: Dr Robin Lachmann PhD FRCP Consultant in Metabolic Medicine Charles Dent Metabolic Unit Box 92 National Hospital for Neurology and Neurosurgery Queen Square London
National Hospital for Neurology and Neurosurgery Queen Square London

April 10, 2014 10AM CDT Time (30 minutes)

If anyone is interested in attending please contact me at lisamariemd@yahoo.com or on facebook (lisa mardis, Birmingham, Alabama.)


http://lisamariemd.wix.com/borc#!campaigns/c1ba5

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)


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A EURORDIS and NORD Member Organization

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