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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, March 28, 2014

BORC Conference Call with Dr. Lachmann

We thank Lisa Marie for her proactive work in the TMAU community. Lisa has now reached "over the pond" to set up a conference call with Dr. Robin Lachmann, M.D., who treats most of the TMAU cases in the UK, and who has done a webinar with two of his unit's dieticians, Charlotte Ellerton and Heidi Chan sponsored by RareConnect in November, 2012. Dr. Lachmann has also been interviewed in multiple documentaries in the UK in which sufferers give their testimonies about living with TMAU. Our whole international community extends our profound gratitude to Dr. Lachmann for taking time to educate and guide us as well as for being so proactive in raising awareness.


BORC Conference Call with Dr. Lachmann, PhD Metabolic Unit
Initiated through BORC (A private support group on Facebook)

Conference call With Dr. Robin Lachmann, PhD
Topic Discussions: Trimethylaminuria, Management, & Testing Process.

Speaker: Dr Robin Lachmann PhD FRCP Consultant in Metabolic Medicine Charles Dent Metabolic Unit Box 92 National Hospital for Neurology and Neurosurgery Queen Square London
National Hospital for Neurology and Neurosurgery Queen Square London

April 10, 2014 10AM CDT Time (30 minutes)

If anyone is interested in attending please contact me at or on facebook (lisa mardis, Birmingham, Alabama.)!campaigns/c1ba5


María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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A EURORDIS and NORD Member Organization


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