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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, August 28, 2014

Another TMAU ebook on Amazon : A Girl's Guide to Managing TMAU

New TMAU book available on Amazon (published April 2014)
A Girl's Guide to Managing TMAU: My Personal Experiences, Diet and Solutions
by Katie Turner
Price : $2.98

It has been noticed that another ebook about Trimethylaminuria by as TMAU 'sufferer' is available on Amazon, published on Amazon on April 2014. This seems to be the 3rd personal TMAU ebook on Amazon. The other 2 books are listed below in the list.

About becoming on author on Amazon
Anyone can be an author on Amazon. As well as raising awareness of TMAU it could also be a possible way to generate some passive income, possibly from 35% to 70% of the purchase (minus any other costs). It seems that Amazon also take a cost per mb of size of the ebook, so using images apart from the cover are suggested, as images are so big in data size and text is not. Of course the book does not have to be about TMAU, as Karen James has shown by publishing her own fiction ebook on Amazon recently.

If you buy the ebook through the links in this post or via the Amazon links in the sidebar, MEBO will get a small % of the purchase at no extra cost to the buyer or to the author.

Amazon USA
Katie Turner TMAU ebook 
list of TMAU personal ebooks 

Amazon USA : The Tourmaline by Karen E James
Amazon UK : The Tourmaline by Karen E James


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