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a PATIENT ADVOCACY International campaign to research SYSTEMIC BODY ODOR AND HALITOSIS
A 501(c)3 Public Charity, USA A Not For Profit LTD Company, England and Wales |
In this case, one should take some time out to be alone to process this news, and to strive to look at the big picture, as limited as it currently is. It seems that body odor and/or halitosis is produced, or greatly influenced by the following phenomena:
- The source of odorous chemicals (foods, gut microbes, pesticides and hormones fed to livestock or plants we eat, preservatives in foods, medicines, alcohol and other drugs, etc.),
- The degree of dysfunction of the metabolic enzymes responsible for the metabolism of each particular odorous chemical,
- The state of the organ(s) in charge of metabolizing these chemicals (the liver) and/or eliminating these chemicals from the body (cleansing organs, i.e., kidneys, skin),
- The environment, which produces odorous chemical, i.e., gut flora, the state of the digestive system, environmental damage to liver (i.e., hepatitis), kidney damage by environmental factors (i.e., infection, alcoholism & drug addiction), other medical conditions, etc.,
- Genetic mutations resulting in odor conditions.
Even though I believe in doing the TMAU test in an attempt to get some answers, I truly believe that the results either way are not the complete picture. In fact, many persons with a positive for TMAU test result cannot control their odor with the TMAU odor-management protocol (scroll down to read all posts). In my opinion, going on a low choline diet may only be scratching the surface of the problem-solution. I believe that we need to address the 5 questions above to truly get a better picture, and thus, to achieve greater control until researchers provide us with a more effective treatment, which hopefully will work not only for TMAU patients, but for other body odor conditions.
María
María de la TorreFounder and Executive Director
A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
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5 comments:
In my opinion, i really think that researchers already know,but they are just not telling, just to get more money out of these sufferers, and if that is the case, may god punish them all, but again, this is my honest opinion, i really believe something more can be done, and its a shame, because there are cures for these diseases and conditions out there, but everyone is turning a blind eye to it.
Some data is missing from this list compared to the last list. E.g. TMAO level 1007.52(#11 in last list), and TMA level 22.60 (#9 in last list) are missing. Or it may be the case that these levels belonged to the people who opted for the re-test, and their levels have decreased now, so the older values are deleted from the list.
If that is the case I would like to know what are new levels of those patients with earlier TMA level 22.60 and TMAO level 1007.52, after following the odor management protocol. Please tell me about the other cases also who opted for the re-test.
You are absolutely correct, anonymous, and thanks for pointing it out to me. It seems that I inadvertently updated the list of Batches 1 thru 9, instead of the list of Batches 1 thru 10. I will correct this over the weekend and put up the new chart that includes Batches 10 & 11. Sorry about that.
Will you please let me know Maria the old and new TMA and TMAO levels of all the patients who opted for the re-test; and after how long gap they took the re-test. I hope that all of them were following the recommended odor management protocol.
The gap between the first tests and the follow-up tests usually is many months to over a year and in some cases more than a year. I'm sorry, but I can't discuss further details without compromising the confidentiality of the participants.
Some first time testers also tell me that they have been on the TMAU odor-management protocol and want to see if their TMA levels are within normal range to determine whether they smell or not. Unfortunately, there was no baseline test results taken before they started the protocol, but at least the test results were normal, indicating that they did not suffer from TMA odor.
This is not to say that they are currently odor free, but it is to say that TMA is the the odorous chemical they are emitting.