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Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.
who is the survey intended for ?
UK residents who identify with TMAU
Living with TMAU study
We invite you to participate in a research project entitled ‘Living with TMAU’.
click to visit survey
survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/
Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.
For individuals with TMAU over the age of 18
For a parent or guardian of a child with TMAU.
The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.
To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.
The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.
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