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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Monday, April 6, 2015

Be a participant of the MEBO Annual Meetup wherever you live

See Embassy Suites Orlando pics
Memphis Meetup/Conf 2013
Washington DC Meetup/Conf 2011
Miami Beach Meetup/Conf 2012
As I have mentioned in previous posts, this year's meetup and conference will be more informal, since some of our scientists are involved in research, designing research, and/or the pursuit of research funding. We have received so much information from our experts for so many years, and many presentations have been shown at previous MEBO Annual Meetups and Conferences, that we really should re-visit them and discuss them to better understand them and incorporate them in our lives.

The main focus for this year's meetup is to re-open and discuss much of the information presented in previous conferences, with a great deal of emphasis on our whole international community's participation. Group participation is strongly encouraged. Unfortunately, since our community is spread out around the world, not everyone can attend the meetup and conference, so therefore, I really hope that each of you send me information that has been most helpful to you, whether it is a professional paper, handouts from our experts, excerpts from an interview of an expert or a webinar, an article, powerpoint presentation, the MEBO Raising Awareness Campaign, or a post in the MEBO Blog, etc. I will try to incorporate the information you provide in our group discussions.

MEBO Annual Meetups & Conference
Scroll down on link to see all posts
At this time, the primary topics to be discussed are,

After the meetup, I will be posting about it in this blog so that those who could not attend can get some information about what was said, and the more people that participate in sending me information, the more we will all benefit in the long run. If you have something that has been particularly helpful to you in your efforts to understand your condition and how to best control it, please share it with me in an email at, or give us the link in a Comment on this post.

Be a participant of the MEBO Annual Meetup/Conference in Orlando 2015, NO MATTER WHAT PART OF THE WORLD YOU LIVE IN! We are one community, and unfortunately, there is no way we can hold a meetup that every sufferer around the world could attend. Geographic locations and language barriers are a significant obstacle that prevents us all from uniting physically, but thankfully, we can do so online through the MEBO sites.

Thanking everyone in advance,


María de la Torre
Founder and Executive Director

A Public Charity
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Anne said...

The conference sounds like it's going to be very informative! Is there any way that the conference can be streamed live on U-Stream or something for those unable to attend in person?

Apr 27, 2015, 1:10:00 PM
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