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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, October 20, 2015

Possible hospital-led TMAU support group in Dublin

It looks like Dr Eileen Treacy may be setting up a TMAU support group in Ireland, based at the Dublin Hospital she works at. Dr Treacy has a long history of being interested in TMAU.

A forum poster posted about this potential support group in Dublin on the forum today
Forum post about Dublin TMAU support group

This would be the first known TMAU support group arranged by healthcare workers and would be a much welcome thing at all hospitals (as few as there are) who help TMAU patients.    

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Anonymous said...

The Queen Elizabeth Hospital in Birmingham (UK) has an Inherited Metabolic Disorders department that sees TMAU patients, and when I went to my last appointment a month or so ago, the consultant said that a psychologist would be joining them in the new year and s/he would start a support group that I could then attend.

If anyone lives near Birmingham, it's worth asking your G.P to refer you if you have TMAU as they do the urine tests, and while there is nothing they can do, other than give the general advice that is out in the public domain, they can check in with you periodically and I guess it raises the profile that there are more people. There is also a specialist nurse, pharmacist and dietician as part of the consultation appointments, so worth going for sure if you have TMAU and can get a G.P to refer you.

Oct 20, 2015, 2:59:00 PM
Maria de la Torre, Founder and Executive Director, MEBO Research said...

Thank you very much for this information. Is it alright if I write a post about this, so that others might find this information more quickly?

Oct 20, 2015, 3:30:00 PM
Anonymous said...

Hi Maria,

Yes of course, please do. The consultant Endocrinologist at the Queen Elizabeth is Dr Tarekegn Hiwot in the Inherited Metabolic Disorders Outpatients Clinic, Queen Elizabeth Hospital, Birmingham, B15 2WB.

It would be useful if people who have the condition are referred if eligible by location as it will raise the profile and legitimise how people are feeling, as well as allow testing. Urine tests are sent to the Sheffield Hospital by the Queen Elizabeth.


Oct 24, 2015, 3:43:00 PM
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