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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Sunday, September 6, 2015

Belgian TV company wants TMAU volunteer

A Belgian TV production company, Sputnik Media, wishes to add a TMAU patient to a TV program they are making. Details below from Flo of Sputnik Media

Hello everybody,

My name is Flo and I am an editor at the Belgian television production company Sputnik Media.

Currently, we are working on a new documentary. The documentary is kind of a reaction against the aesthetic perfectionism that is prevalent in our society. We want to eliminate prejudices by informing people about existing conditions and we want to make people aware of their often wrong impressions about people based on their appearance.

Therefore, our host (a well-known Belgian public figure) will conduct an interesting experiment: although she is quite concerned about her looks and appearance, she won't clean herself, won't wash her hair and body, won't use any cosmetics etc during a whole month.

During that month, she will also meet some very interesting people with intriguing stories. Like that, we want to inform people and try to reduce the erroneous preconceptions about certain conditions.

Therefore, we would love to arrange a meeting between our host and someone with TMAU, if possible, someone from (or near) Belgium... (Nonetheless: we are interested in EVERY story!)

Do you want to share your story with us? Do you want to help us by introducing us to others or to TMAU specialists? Or do you have any questions, doubts...? Please don't hesitate to contact me: I will be happy to help you!

Kind regards and I wish all of you all the best,

Flo
flo@sputnik.be

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A EURORDIS and NORD Member Organization

1 comments:

Anonymous said...

Popular show in UK called undateables on channel 4 is also looking for someone.

Sep 7, 2015, 12:23:00 AM
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