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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, August 16, 2016

Launching Metabolomic Profiling Research Study

Update on the

Canadian Metabolomic Research Study

All 27 sufferers in Canada who consented to be participants in this study will receive their kits very soon.

I am excited to announce that we have received an email from the PhD in charge of the Metabolomic Profiling Study in Canada, NCT02683876, who tells us the following,

Hello All,

Just wanted to give you an update on the status of this project. The urine collection kits have now been sent out to the participants. I will keep you updated when all samples have been received.

All 27 sufferers in Canada who consented to be participants in this study will receive their kits very soon. Please make sure you follow the instructions carefully in order to obtain accurate results.

MEBO requested from the lab that each participant of this pilot study receive his or her own results report, even though the data probably would not mean much initially. We don't know for certain whether this will be the case. The results may have noteworthy meaning only after the study has been underway for quite some time and after all participants' results have been compared to the control group of subjects who do not have breath/body odor conditions.

There is no guarantee that there will be any significant data since this is an exploratory study, but we sure hope there will be data that will ultimately help sufferers, especially those who tested negative for TMAU and have no other recourse. Let's hope and pray that this metabolomic study will help many sufferers around the world for years to come.

Updates to this program will be posted in this blog as they are provided by the research lab.  MEBO thanks all the participants of this study who have made this possible.


María de la Torre
Founder and Executive Director

A Public Charity (em português)
MEBO's Blog (English)
El Blog de MEBO (español)

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A EURORDIS and NORD Member Organization


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