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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Tuesday, August 16, 2016

Launching Metabolomic Profiling Research Study


Update on the

Canadian Metabolomic Research Study

All 27 sufferers in Canada who consented to be participants in this study will receive their kits very soon.

I am excited to announce that we have received an email from the PhD in charge of the Metabolomic Profiling Study in Canada, NCT02683876, who tells us the following,


Hello All,

Just wanted to give you an update on the status of this project. The urine collection kits have now been sent out to the participants. I will keep you updated when all samples have been received.


All 27 sufferers in Canada who consented to be participants in this study will receive their kits very soon. Please make sure you follow the instructions carefully in order to obtain accurate results.

MEBO requested from the lab that each participant of this pilot study receive his or her own results report, even though the data probably would not mean much initially. We don't know for certain whether this will be the case. The results may have noteworthy meaning only after the study has been underway for quite some time and after all participants' results have been compared to the control group of subjects who do not have breath/body odor conditions.


There is no guarantee that there will be any significant data since this is an exploratory study, but we sure hope there will be data that will ultimately help sufferers, especially those who tested negative for TMAU and have no other recourse. Let's hope and pray that this metabolomic study will help many sufferers around the world for years to come.

Updates to this program will be posted in this blog as they are provided by the research lab.  MEBO thanks all the participants of this study who have made this possible.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)


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A EURORDIS and NORD Member Organization

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