Each year, EURORDIS, the global host and founder of Rare Disease Day, releases a unique video that focuses on the designated theme for the year. The 2017 video is about the critical importance of rare disease research.
Research is key. It brings hope to the 30 million Americans living with a rare disease and their families, and millions more around the world. With your support of ongoing research efforts, things can change for the rare disease community.
- Sign up as an individual supporter
- Sign your organization or company up as a partner
- Become a Sponsor
- Make your voice heard
- TheNORDProject.comK.
- Rare Disease Day, GET INVOLVED!
- Learn about Global Themes.
Help Drive Research This Rare Disease Day(click on picture) |
María de la Torre
Founder and Executive Director
A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)
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