Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out
March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

MEBO Research Clinical Trials

Friday, February 24, 2017

Adult TMAU Referrals : Evelina Hospital London

Adult TMAU referrals.
Adult Metabolism Unit.
Evelina Children's Hospital, inside St Thomas Hospital.
Accept GP and local consultant referrals.
Similar service to Charles Dent London service.
Referrals : England (current info).
Added to MEBO Map (see sidebar).
Email :
Website : Evelina Adult TMAU refer

Mebo has become aware that another ADULT METABOLISM UNIT in LONDON has said it accepts ADULT referrals for TMAU. This would be similar to the Charles Dent Unit run by Dr Lachmann in North London.

How to get referred : 
You would need a GP or Local Consultant referral. There is a chance it may be for South London only (to be confirmed).
Full details can be seen on their website.
The current email on their website does not work (Feb 2017).

Contact details :
Adult Metabolism Unit
referral details :

Dr Yusof Rahman/Dr Radha Ramachandram, Consultants in Inherited Metabolic Disease
Department of Inherited Metabolic Disease
Evelina London Children's Hospital
3rd Floor, Becket House
Lambeth Palace Road
London SE1 7EU

The adult metabolic public e-mail address for GP referrals is:

phone :
020 7188 4004

Adult TMAU referrals : Evelina Hospital London

Why go to an Adult Metabolism Unit ?
They have likely heard of TMAU and know the basics of TMAU.
Will likely order urine test easily. Then DNA test if positive for urine test.
Some sympathy.
They may have TMAU group sessions (a new trend).
Diet advice from the Diet Team.
Official diagnosis etc.

Adult Metabolism Units :
These seem to be a new trend in the UK, perhaps due to the single structure of the UK Health Service (NHS, top-down orders). At the moment it is likely the TMAU person will know everything told already, but the service for TMAU is in it's early years.
In other countries, perhaps you can look around to see if there are Adult Metabolism Units in your region.  

NHS Law/Contract circa 2014
Perhaps this NHS contract/law paper from circa 2013 has helped with the new clarity of Adult Inherited Disorder units purpose in the UK. Trimethylaminuria is included in the list.
NHS : E06 : Metabolic disorders : Scope

The MEBO Map (in the sidebar) is intended as a map of TMAU 'places', mainly places of help. Most of the locations are UK. The Heidelberg TMAU test is thought to be quite accurate. Also Denver TMAU test.
Better/new information for the map is always welcome.

Correction to this post are welcome.
If anyone has been to Evelina for TMAU, you can comment about it if you want.

get New Posts by EMAIL : Enter your email address :

A EURORDIS and NORD Member Organization


Post a Comment