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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, February 23, 2017

Kelly TMAU story goes viral media/internet

Thanks to Kelly who has done a TMAU media piece for Barcroft TV on youtube which has gone viral, including in the Daily Mail (world's most read new site). She also appeared on 'ITV This Morning' show the day after. Many world news sites also picked up the story.

Some stats after 2 days since the video upload to Barcroft :

Daily Mail stats : (article here)
10k shares.
2nd most read story in Health section over 7 days.
5th most read story in Health section over 30 days.
341 comments.

Other stats :
Barcroft YouTube channel :  254k views
ITV youtube views (1 day) : 19k views





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A EURORDIS and NORD Member Organization

3 comments:

Anonymous said...

Itv this morning interview is under the search of 'body odour' so hopefully more people looking into body odour problems will come across this video very easily.

Feb 26, 2017, 11:10:00 PM
blogcontributor2 said...

the ITV video seems to have gone viral too. 103K views in about 4 days and counting. They have 4000+ videos and it's already most popular #196 and going up in their channel. This could want more tmau guests in future.

Feb 27, 2017, 2:57:00 AM
Anonymous said...

Very exciting.

Feb 27, 2017, 4:37:00 PM
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