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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, February 12, 2017

KunKun Sniffer Sensor Smartphone app for underarm BO / smelly feet

Konica Minolta developing a 'sweaty smells BO/feet' sensor app for smartphones.
'KunKun' (Japanese for 'sniff sniff').
Not available yet. (est. launch Japan : summer 2017)
Detects metabolites associated with sweaty body/feet odor.
Very little info so far.
First media reports this week.

This week media has reported that Konica Minolta company of Japan are developing a consumer sensor device that detects metabolites associated with 'underarm body odor' 'foot odor' or 'middle age fat odor'.

The sensor will be hardware that displays data info on a device (e.g. Smartphone, computer). Probably the info will be sent by bluetooth.

What you will need :
The hardware sensor.
A device to display the data (e.g. smartphone)

What metabolites it detects :
Reports say ...
isovaleric acid

Konica :
It seems they started this research maybe 1 1/2 years ago, The aim will be a consumer device.

They are using a High Accuracy Nose Assist to sense odors, Currently this has led to the KunKun for sweaty odor metabolites, Maybe in the future the Hana can be used to detect other smelly gases.  

How is the info displayed on a device (e.g. smartphone) ?
It looks like each gas chemical will be marked out of 5 for strength, Pretty basic. A bit like a traffic light system. Ultimately actual measurements will be wanted by most users.

Sensor technology :
A few things need to be kept in mind re consumer sensors :
1. The technology is at an early stage. Probably any device will be seen akin to a 1970's computer in a few years. Groundbreaking at the time, but in hindsight pretty rubbish.
2. The 'market' seems to be just waking up to the concept of a 'smell market'. Even if you take the 'paranoid smell teen phobia' market, possibly most teens would want a smell sensor to check for smells. Until recently the sensor market does not seem to have considered this market. 
Recently Mark Cuban and all the Shark Tank investors invested in a smartphone alcohol sensor on Shark Tank. An observation would be this wasn't a very interesting idea. But now they have abandoned 'alcohol meter. and switched to a breath sensor (Mint Breathometer). There has been lots of investment in this device. So far it has not been available despite being scheduled for last Fall. One possibility is they have been overwhelmed with orders.

All current consumer sensors should be regarded as poor/useless :
This would be a good rule of thumb when buying a consumer 'sniffer' device currently. 

A consumer sensor will be as important as a cure for the Metabolic Malodor Community :
Most people with metabolic malodors cannot smell when they smell. So a consumer sensor is as important as a cure, because only with a reliable sensor can a person be sure they don't smell. It has been something MEBO has tried to source over the years, to no avail. Probably the company directors realising the hugeness of the 'malodor phobia' market will now takeover and the market will naturally come up with devices, though it could be a few years yet. 

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