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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
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UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Sunday, February 12, 2017

KunKun Sniffer Sensor Smartphone app for underarm BO / smelly feet

Konica Minolta developing a 'sweaty smells BO/feet' sensor app for smartphones.
'KunKun' (Japanese for 'sniff sniff').
Not available yet. (est. launch Japan : summer 2017)
Detects metabolites associated with sweaty body/feet odor.
Very little info so far.
First media reports this week.

This week media has reported that Konica Minolta company of Japan are developing a consumer sensor device that detects metabolites associated with 'underarm body odor' 'foot odor' or 'middle age fat odor'.

The sensor will be hardware that displays data info on a device (e.g. Smartphone, computer). Probably the info will be sent by bluetooth.

What you will need :
The hardware sensor.
A device to display the data (e.g. smartphone)

What metabolites it detects :
Reports say ...
ammonia
isovaleric acid
2-nonenal

Konica :
It seems they started this research maybe 1 1/2 years ago, The aim will be a consumer device.

HANA :
They are using a High Accuracy Nose Assist to sense odors, Currently this has led to the KunKun for sweaty odor metabolites, Maybe in the future the Hana can be used to detect other smelly gases.  

How is the info displayed on a device (e.g. smartphone) ?
It looks like each gas chemical will be marked out of 5 for strength, Pretty basic. A bit like a traffic light system. Ultimately actual measurements will be wanted by most users.

Sensor technology :
A few things need to be kept in mind re consumer sensors :
1. The technology is at an early stage. Probably any device will be seen akin to a 1970's computer in a few years. Groundbreaking at the time, but in hindsight pretty rubbish.
2. The 'market' seems to be just waking up to the concept of a 'smell market'. Even if you take the 'paranoid smell teen phobia' market, possibly most teens would want a smell sensor to check for smells. Until recently the sensor market does not seem to have considered this market. 
Recently Mark Cuban and all the Shark Tank investors invested in a smartphone alcohol sensor on Shark Tank. An observation would be this wasn't a very interesting idea. But now they have abandoned 'alcohol meter. and switched to a breath sensor (Mint Breathometer). There has been lots of investment in this device. So far it has not been available despite being scheduled for last Fall. One possibility is they have been overwhelmed with orders.

All current consumer sensors should be regarded as poor/useless :
This would be a good rule of thumb when buying a consumer 'sniffer' device currently. 

A consumer sensor will be as important as a cure for the Metabolic Malodor Community :
Most people with metabolic malodors cannot smell when they smell. So a consumer sensor is as important as a cure, because only with a reliable sensor can a person be sure they don't smell. It has been something MEBO has tried to source over the years, to no avail. Probably the company directors realising the hugeness of the 'malodor phobia' market will now takeover and the market will naturally come up with devices, though it could be a few years yet. 



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