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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, February 11, 2017

Update: MEBO Metabolomic Profiling Pilot Study

Metabolomic Profiling

I am very excited to have received an email from the scientist, Business Developer Manager, of The Metabolomics Innovation Center, University of Alberta, Canada, who will be analyzing the urine samples of the MEBO Metabolomic Profiling Study. She tells me,

Maria...I've confirmed with [the scheduler] that we should be able to run your samples on at least 2 analytical platforms and get the data to you before your conference. We will keep you posted.

She had given me the links to the 3 assays she and Dr. Wishart decided to start the analysis of our Pilot Study,

1) DI-MS

2) NMR

3) GC-MS Organic Acids assay

I have attached a link to our website for each assay so that you can have a look at the range of metabolites that will be covered.

The results of at least 2 out of 3 analytical platforms will also be analyzed by MEBO's Scientific Director and member of the MEBO Institutional Review Board (a.k.a. Ethics Committee), Irene Gabashvili, PhD. These results will be a topic of discussion at our Annual MEBO Meetup and Conference at 8:00p.m., on March 31, 2017, at the,

Penguin Hotel
Rooftop Terrace
 1418 Ocean Drive
South Beach>
Miami Beach, FL 33139, USA
305 534 9334

I'm very much looking forward to seeing many of you at this great event where we share a great deal of information with other fellow sufferers, and enjoy beautiful South Beach!


María de la Torre
Founder and Executive Director

A Public Charity
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