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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, January 11, 2018

Announcement: New MEBO Community Outreach Director
It is with great pleasure that I announce our new MEBO Community Outreach Director in the United States. Akiya J. Browning has accepted this official part of MEBO Research with much enthusiasm, which can best be stated in her own words:

Maria, it would be my absolute pleasure to become an official part of MEBO Research, and I would be more than happy to accept your offer. I am willing to do whatever it takes to make sure MEBO and TMAU sufferers around the world have the best opportunity to find this community, to help raise awareness, finding support for discovering alternative treatments and eventually a cure, and everything in between. I am truly honored, Maria, and becoming a member of MEBO would be my pride and joy.

Akiya has been instrumental in demonstrating great initiative in proactively performing work for MEBO that has achieved the goals she mentions above. I am very much looking forward to what she can accomplish for our international community in years to come. For example, she created an image of cards back in 2016, which she had printed, in her effort to raise awareness locally for MEBO and TMAU. She is more than happy to send these cards, free of charge, to to members who may be interested in participating in her Raising Awareness Campaign.

Below is some information about AJ Browning:

- (Name) Akiya J. Browning
- Criminal Justice Undergraduate
-Emergency Dispatcher for 2 years
- Raising Awareness locally for MEBO and TMAU for 1 year (and I'd like to send you an image of the cards I ordered last year, and I'm willing to send those cards out to members for free if they're interested)
- Has had TMAU for over 9 years
- Volunteer researcher for MEBO group members

We welcome you as a director with open arms, and I ask everyone in our community to support you in your initiatives.



María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
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