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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, April 25, 2018

Announcing the new MEBO Outreach & Strategy Director

I am very excited to announce that Companies House in England and Wales has approved my request for Mehmet Ali to assume the position of Outreach & Strategy Director of MEBO Research. I'm elated that Mehmet Ali accepted this position, and I am encouraged to see his very strong enthusiasm to propel the MEBO Mission to greater heights. Mehmet plans to carry out his directorship organizing sufferers to create new projects and to encourage all sufferer to become very active participants of various aspects of our international Charity, testing, research, raising awareness, meetups, etc.

Please give Mehmet Ali your strong support, as he will be reaching out to everyone in hopes to get everyone involved in our current projects, such as,
  1. Supporting the All of Us initiative when it's time to upvote and comment on the proposal, 
  2. The ongoing uBiome gut microbiome research MEBO's Scientific Director, Irene Gabashvili and Danny Kunz and the Citizen Research Group currently have in place in the U.S. and in Germany, 
  3. To pursue a lot more research into PATM throughout the world
  4. To help organize and spread testing and research opportunities to sufferers/participants throughout the world as MEBO negotiates with experts to get these programs off the ground
  5. To receive, consider, organize and put into action recommendations made by sufferers who volunteer to be a part of the solution, etc.
as well as to bainstorm to initiate new projects.

Mehmet will be announcing his ideas and plans of how he will carry out his directorship. Please join me in giving him your full support and encouragement as he launches his new plans.


María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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A EURORDIS and NORD Member Organization


Anonymous said...

Mehmet Ali may Allah help you to succeed in these mentions.

Apr 26, 2018, 7:28:00 AM
Liz said...

Well done Mehmet, and thank you for what you are doing on our behalf. We will all do what we can to help, but can I just ask, how will you be communicating with us? I am on the mebo em ail list to receive alerts when new articles like this are posted on this website. Is this how you will contact us?

Apr 26, 2018, 9:50:00 AM
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