Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Scroll down and select country
MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, April 14, 2018

Mental Health Director's Topics: Crisis Prevention, Work & TMAU


The following are papers the new MEBO Mental Health Director has written for our community:

CRISIS PREVENTION PLAN

We all have been there, some of us admit it and some of us are ashamed to admit it. Fact is that a lot of us have experienced thoughts about suicide. Feelings and thoughts of suicides can occur when you feel hopeless, helpless and feel that there is not solution for your problems. The anguish, distress and pain is becoming bigger than your ability to cope with the situation. The only way out might seem like committing suicide... (Click on icon to see paper)

Work and Trimethylaminuria

Valuable tips for finding and keeping a job with Trimethylaminuria
Author: Crissan Rosalia
Mental Health Director, MSc. Health Psychology

Having a job when you have a malodor condition like Trimethylaminuria (TMAU), is not always easy. For people with TMAU, working can be very stressful. This is because sufferers are worried about offending their coworkers, they also worry constantly about getting fired due to their symptoms. Sometimes sufferers are bullied and harassed, which can create a tense work environment in which they feel powerless, depressed and anxious. Despite all of these factors, having a job can be very beneficial. These benefits can actually be regarded as protective factors which can increase the health and wellbeing, even of patients with malodor conditions...(Click on icon to see paper)


Worksheet 1.1 Working conditions

This chart is an overview of several possible work conditions you might consider when applying for  job or when you already have a job and want to evaluate or negotiate with your supervisor. Each column has a color, Green= YES, ideal job condition, Yellow= Maybe or negotiable, these are conditions you might consider or are optional, Red= NO or deal breaker, these are conditions that are not favorable. You can add your own conditions as well!

What type of work would you like to do?
Do you have the necessary qualifications (diploma’s, certificates and work experience) to apply for this job? If you don’t, what steps can you take to become eligible for the job you want to apply for?
On a scale of one to ten how motivated are you to keep working or start with a new job?
Are you willing to talk about your health condition at work ?

Crissan

Crissan Rosalia
Mental Health Director

A Public Charity
c.rosalia@meboresearch.org
www.meboresearch.org
MEBO's Blog (English)



SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


get New Posts by EMAIL : Enter your email address :



A EURORDIS and NORD Member Organization

0 comments:

Post a Comment