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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, April 14, 2018

Mental Health Director's Topics: Crisis Prevention, Work & TMAU

The following are papers the new MEBO Mental Health Director has written for our community:


We all have been there, some of us admit it and some of us are ashamed to admit it. Fact is that a lot of us have experienced thoughts about suicide. Feelings and thoughts of suicides can occur when you feel hopeless, helpless and feel that there is not solution for your problems. The anguish, distress and pain is becoming bigger than your ability to cope with the situation. The only way out might seem like committing suicide... (Click on icon to see paper)

Work and Trimethylaminuria

Valuable tips for finding and keeping a job with Trimethylaminuria
Author: Crissan Rosalia
Mental Health Director, MSc. Health Psychology

Having a job when you have a malodor condition like Trimethylaminuria (TMAU), is not always easy. For people with TMAU, working can be very stressful. This is because sufferers are worried about offending their coworkers, they also worry constantly about getting fired due to their symptoms. Sometimes sufferers are bullied and harassed, which can create a tense work environment in which they feel powerless, depressed and anxious. Despite all of these factors, having a job can be very beneficial. These benefits can actually be regarded as protective factors which can increase the health and wellbeing, even of patients with malodor conditions...(Click on icon to see paper)

Worksheet 1.1 Working conditions

This chart is an overview of several possible work conditions you might consider when applying for  job or when you already have a job and want to evaluate or negotiate with your supervisor. Each column has a color, Green= YES, ideal job condition, Yellow= Maybe or negotiable, these are conditions you might consider or are optional, Red= NO or deal breaker, these are conditions that are not favorable. You can add your own conditions as well!

What type of work would you like to do?
Do you have the necessary qualifications (diploma’s, certificates and work experience) to apply for this job? If you don’t, what steps can you take to become eligible for the job you want to apply for?
On a scale of one to ten how motivated are you to keep working or start with a new job?
Are you willing to talk about your health condition at work ?


Crissan Rosalia
Mental Health Director

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