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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Wednesday, September 19, 2018

TMAU MEBO Director on Dutch TV ... New TMAU Youtube video

MEBO Mental Health Director, Crissan Rosalia, Health psychologist, MSc., appeared on Dutch TV tonight on a program about smells.
Her part was to talk about living with TMAU.
In it she talks of smelling of manure, cigarette smoke, poop, garbage (typical smells the TMAU community identify with).

The full program may be available sometime (includes the story of a lady with anosmia).

The program makers have kindly issued a shorter TMAU video of the program to their youtube channel.

We are grateful to Crissan for being so brave, and the program makers for taking an interest and promoting awareness of TMAU.

Crissan not only very proactively raises awareness about TMAU, but she also dedicates herself to help sufferers cope emotionally with living with this condition. She writes a monthly Mental Health Column in this blog with her professional views on coping and understanding.

Comment from Crissan about the program
Today the NTR ( a Dutch tv channel) is going to post this short mini-report about Trimethylaminuria on their website. They have already posted it on Youtube. Tomorrow the full interview will air on Dutch tv. The producer, Dirk De Bekker, has told me that this episode about "smells", is already getting alot of attention, not only from people in the Netherlands, but worldwide. Hopefully this will help raise more awareness for TMAU.

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