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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Wednesday, September 19, 2018

TMAU MEBO Director on Dutch TV ... New TMAU Youtube video

MEBO Mental Health Director, Crissan Rosalia, Health psychologist, MSc., appeared on Dutch TV tonight on a program about smells.
Her part was to talk about living with TMAU.
In it she talks of smelling of manure, cigarette smoke, poop, garbage (typical smells the TMAU community identify with).

The full program may be available sometime (includes the story of a lady with anosmia).

The program makers have kindly issued a shorter TMAU video of the program to their youtube channel.

We are grateful to Crissan for being so brave, and the program makers for taking an interest and promoting awareness of TMAU.



Crissan not only very proactively raises awareness about TMAU, but she also dedicates herself to help sufferers cope emotionally with living with this condition. She writes a monthly Mental Health Column in this blog with her professional views on coping and understanding.

Comment from Crissan about the program
Today the NTR ( a Dutch tv channel) is going to post this short mini-report about Trimethylaminuria on their website. They have already posted it on Youtube. Tomorrow the full interview will air on Dutch tv. The producer, Dirk De Bekker, has told me that this episode about "smells", is already getting alot of attention, not only from people in the Netherlands, but worldwide. Hopefully this will help raise more awareness for TMAU.

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A EURORDIS and NORD Member Organization

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