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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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Full details : https://goo.gl/TMw8xu
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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, November 2, 2018

uBiome: World's largest Human Microbiome Dataset

Click on icon
to see full article




uBiome - The Largest
Human Microbiome Dataset



Did you know that uBiome has the largest human microbiome dataset in the world? We're sharing our story of how we built this dataset, what we've learned from it, and what this means for the future of microbiome science.

Initially, uBiome collected 2,500 samples in a crowdfunding campaign. Now, six years later, uBiome has over 250,000 samples from all over the world, with over 1 million projected in 2019.
Click below to read more about what uBiome has learned so far:
As noted in previous posts, MEBO Research is most grateful to uBiome for the research grant they have provided us, which includes providing us with 3 sample collection Explorer Gut kits for over 100 participants around the world and the sequencing of the microbiome of each sample for the Clinical Trial, "Microbial Basis of Systemic Malodor and PATM Conditions (PATM)" registered with ClinicalTrials.gov. To see all posts regarding this research study, click here.

In addition to sequencing the samples of the MEBO participants, they are provided with a comparison of each sample results to those of the 250,000 samples in the uBiome dataset. These results are then given to the Principal Investigator of this study, Dr. Irene Gabashvili, PhD., MEBO Scientific Director, to further analyze these results in relations to odor and PATM conditions. Dr. Gabashvili describes the details of the study:

Human odorprints, mostly owing to the microbiome, have proven their value as biomarkers of health and environmental exposures. In recent years, microbial networks responsible for localized malodors such as halitosis or axillary odor have been mapped by using next generation sequencing approaches. Intestinal microbes responsible for psychologically debilitating systemic malodor (whole-body and extraoral halitosis), however, remain to be identified. Even a relatively straightforward disorder of choline metabolism trimethylaminuria (TMAU) is thought to exhibit complex host-gene microbiome interactions and has not been sufficiently studied.

Proposed controlled pilot study aims to explore the dynamics of microbial communities in remission and flare-up periods. Better knowledge of the important aspects of disease fluctuation should enhance patient care and, combined with our prior data, will help to develop new therapies and treatments.
https://clinicaltrials.gov/ct2/show/NCT03582826

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)



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A EURORDIS and NORD Member Organization

2 comments:

Anonymous said...

I THINK THAT ITS SO SAD THAT THIS IS ALL THEY HAVE COME UP WITH SINCE 1970, WHICH IS WHEN ONE OF THE FIRST CASES OF TMAU HAS BEEN BROUGHT UP, I MEAN, THESE SCIENTIEST MUST KNOW SOMETHING BY NOW ABOUT HOW TO STOP TMAU ODORS, COME ON PEOPLE, A PERSON WITH TMAU IS GOING TO BE THE ONE TO FIGURE THIS OUT BEFORE THE SCIENTIST DO,I HEAR OF PEOPLE WANTING TO KILL THEMSELVES OVER THIS CONDITION BECAUSE OF THE RIDICULE THATS PLACED UPON THEM, SO MUCH MORE NEEDS TO BE DONE, PEOPLE ARE CONTEMPLATING SUICIDE FOR GOD SAKE. PROCTOR AND GAMBLE HAS A PILL WAITING FOR 2020 TO PUT ON THE MARKET, BUT WHY WAIT UNTIL THEN, PEOPLE ARE DYING. I JUST DON'T GET IT AT ALL.

Nov 4, 2018, 10:57:00 AM
Anonymous said...

GRACIAS MARIA POR SU FUNDACION

Nov 8, 2018, 7:11:00 PM
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