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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, November 8, 2018

PATM Research Paper 2018

Click on icon to see paper (English translation)
Original in Japanese

PATM Research Paper

Click on icon to see
Power Point Presentation
Yoshika Sekine, PhD, Professor at Tokai University, Japan, President, Society of Indoor Environment, Japan, along with a team of scientists carried out research on PATM Syndrome . We are highly thankful to all of them for giving their precious time to researching and exploring PATM Syndrome.

On April 14, 2018, the Founder and Executive Director of MEBO Research, Maria de la Torre, asked Prof. Sekine to help present his work to raise awareness throughout the globe from the MEBO Annual Conference & Meetup held in Savannah, Georgia this year.Our most sincere thanks to Prof. Yoshika for creating a PowerPoint presentation and providing us with his research paper on the study . We have shared this in many forums through platform of MEBO . The research paper was in Japanese language so MEBO arranged to translate the PATM Syndrome research paper in English language with the help of Director of Community Outreach and Strategy , Mehmet Ali.

Again Sir, thanks you very much for working on this syndrome. Please do not hesitate to contact me if you believe there is anything I can do to support your work.

Research paper is property of Prof. Yoshika and their co-authors and is translated and presented in the MEBO sites with their expressed consent.  We want to raise awareness throughout the globe about PATM syndrome using this effort of Prof and his team of scientists. I hope this information is helpful to other scientists and inspires future research into PATM...


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