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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
Read more/less

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, February 9, 2019

Crissan's Mental Health Column: Resilience

Click to read article




FEBRUARY 2019

MEBO Mental Health Monthly Column
MEBO Mental Health Director
RESILIENCE
Action plan

THE STRONGEST
PEOPLE ARE NOT
THOSE WHO SHOW
STRENGTH IN FRONT
OF US BUT THOSE WHO
WIN BATTLES WE
KNOW NOTHING
ABOUT
In her December Mental Health Column post, Crissan focused on coping with the holidays and offers an action plan for stress management. Now in her February Mental Health Column post, she addresses misconceptions about resilience, the different types of resilience, such as natural, adaptive and restored resilience. She points out the effects stress and trauma tend to have on resilience over time, and elaborates on the concept of Locus of control, differentiating between internal and external locus of control. Two pages of this paper expounds indepth discussion on how to increase resilience, with step by step methods of how to develop it.


Resilience is not a trait, but rather a set of skills that can be developed with practice. Malodor and PATM patients can learn to be resilient in order to deal with the hardships they encounter on a daily bases. Sometimes this can come easy, other times it can be difficult, but with training it can definitely be attainable.

The love and care with which Crissan takes her time to write these articles for us never ceases to amaze me. She does so with such careful thought to make sure we get it right. We can freely make use of the valuable tools with which she provides us in order to attain the wherewithal to improve our lives. She gives her heart and soul to lift up our community so that each can find happiness and peace. Thank you for this, Crissan!


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
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A EURORDIS and NORD Member Organization

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